Strategies for Recruiting People With Dementia to Music Therapy Studies: Systematic Review

Author:

Baker Felicity A12,Pool Jonathan3,Johansson Kjersti2,Wosch Thomas4,Bukowska Anna A5,Kulis Aleksandra5,Blauth Laura4,Stensæth Karette2,Clark Imogen N1,Odell-Miller Helen3

Affiliation:

1. Faculty of Fine Arts and Music, The University of Melbourne, Melbourne, Victoria, Australia

2. Centre for Research in Music and Health, Norwegian Academy of Music, Oslo, Norway

3. Cambridge Institute for Music Therapy Research, Anglia Ruskin University, Cambridge, UK

4. Hochschule für angewandte Wissenschaften Würzburg-Schweinfurt, Würzburg, Germany

5. Institute of Applied Science, University of Physical Education, Kraków, Poland

Abstract

Abstract Positive effects of music therapy for people with dementia and their family carers are reported in a growing number of studies. However, small sample sizes or low recruitment rates often limit the success of these research studies. More adequately powered evidence-based studies are needed to impact policy and funding in dementia care. This systematic review examined recruitment strategies in music therapy clinical trials involving people living with dementia and/or their family carers. Eligible studies described enrolment, consent, accrual, or recruitment methods as well as recruitment or consent rates. Thirty studies with a total of 1,192 participants were included. Recruitment and conversion rates in residential aged care facilities (RACFs) (14 studies) were substantially higher than in community-based studies (16 studies). Whereas studies in RACFs most commonly recruited participants through staff approaching residents face-to-face or conversing with residents’ legal guardians, community-based studies utilized a vast array of strategies, including staff referral, demonstrations/information sessions by researchers, advertisements, and direct contact with residents. Recruitment rates are likely to be higher when recruiters have an existing relationship with potential participants and when an independent third-party dementia organization is involved. Randomized controlled trials led to equally or greater recruitment conversion rates than other designs. Findings suggest that recruitment in dementia trials is complex, challenging, and needs thorough planning and consideration to be time- and cost-effective. Future studies should include reporting of recruitment strategies, enrolment rates, and related aspects so that researchers can better design recruitment strategies and estimate resources needed to reach the target sample size.

Funder

National Health and Medical Research Council

Norwegian Research Council

Federal Ministry of Education and Research Germany

National Centre for Research and Development

Publisher

Oxford University Press (OUP)

Subject

Music,General Medicine,Complementary and Manual Therapy

Reference58 articles.

1. HOMESIDE: A home-based family caregiver-delivered music intervention for people living with dementia: Protocol of a randomised controlled trial;Baker;British Medical Journal Open,2019

2. Connecting through music: A study of a spousal caregiver-directed music intervention designed to prolong fulfilling relationships in couples where one person has dementia;Baker;Australian Journal of Music Therapy,2012

3. A group therapeutic songwriting intervention for family caregivers of people living with dementia: A feasibility study with thematic analysis;Baker;Frontiers in Medicine,,2018

4. Resource assessment in trials undertaken in residential care homes: Experiences from the Australian MIDDEL cluster randomised controlled trial research team;Baker;Contemporary Clinical Trials Communication,2020

5. Strategies to improve recruitment of people with dementia to research studies;Bartlett;Dementia,2019

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