Delivering physiotherapy services in developing countries for children with cerebral palsy: An example from North Uganda

Author:

Alberghina Laura12,Ochola Emmanuel3,Turibamwe Cosmas2,Omona Venice4,Stacchiotti Silvia5,Malloggi Chiara1ORCID

Affiliation:

1. Department of Neurorehabilitation Sciences, Istituto Auxologico Italiano, IRCCS , Milan, Italy

2. Physiotherapy Department, St. Mary’s Hospital Lacor , Gulu, Uganda

3. Research and Documentation Department, St. Mary’s Hospital Lacor , Gulu, Uganda

4. Pediatric Department, St. Mary’s Hospital Lacor , Gulu, Uganda

5. Department of Cancer Medicine, Fondazione IRCCS Istituto Nazionale Tumori , Milan, Italy

Abstract

Abstract Objectives This study aims to test the feasibility of a mixed outpatient/home physiotherapy programme on a sample of children with cerebral palsy screened at St. Mary’s Hospital Lacor in Gulu, Uganda from January to December 2017. Methods Improvement in motor function was investigated using the Gross Motor Function Measure 66-item version (GMFM-66, range: 0 to 100, the higher the score, the better the condition). Physiotherapy treatment and home exercise training for the caregivers of children were carried out at baseline and then every 2 weeks for 3 months to follow. Changes in GMFM-66 score were collected in week six and twelve. Results Patients who attended at least one of these visits were analysed. Fifty-five children aged 0.5–12 years were enrolled, 67% (37/55) were lost at follow-ups. The eighteen participating children throughout the programme scored a median GMFM-66 score of 13.5 at baseline, 16.0 in week six, and 19.7 in week twelve (P = 0.02). Conclusions This programme can lead to clinical improvement. Feasibility, however, depends on the accessibility of physiotherapy services and on community-based interventions.

Funder

Istituto Auxologico Italiano

Publisher

Oxford University Press (OUP)

Reference31 articles.

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2. A report: the definition and classification of cerebral palsy April 2006;Rosenbaum;Dev Med Child Neurol,2007

3. A systematic review of interventions for children with cerebral palsy: state of the evidence;Novak;Dev Med Child Neurol,2013

4. Health-related quality of life of children and adolescents with cerebral palsy in low- and middle-income countries: a systematic review;Power;Dev Med Child Neurol,2018

5. Prevalence of cerebral palsy in Uganda: a population-based study;Kakooza-Mwesige;Lancet Glob Heal,2017

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