The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: baseline data and contemporary management of adult patients with cardiomyopathies

Author:

Charron Philippe12,Elliott Perry M3,Gimeno Juan R45,Caforio Alida L P6,Kaski Juan Pablo7,Tavazzi Luigi8,Tendera Michal9,Maupain Carole1,Laroche Cécile10,Rubis Pawel11,Jurcut Ruxandra12,Calò Leonardo13,Heliö Tiina M14,Sinagra Gianfranco15,Zdravkovic Marija16,Kavoliūnienė Aušra17,Felix Stephan B1819,Grzybowski Jacek20,Losi Maria-Angela21,Asselbergs Folkert W2223,García-Pinilla José Manuel524,Salazar-Mendiguchia Joel25,Mizia-Stec Katarzyna26,Maggioni Aldo P1027,Anastasakis Aris,Biagini Elena,Bilinska Zofia,Castro Francisco Jose,Celutkiene Jelena,Chakova Natalija,Chmielewski Przemyslaw,Drago Fabrizio,Frigy Attila,Frustaci Andrea,Garcia-Pavia Pablo,Hinic Sasa,Kindermann Ingrid,Limongelli Giuseppe,Medrano Constancio,Monserrat Lorenzo,Olusegun-Joseph Akinsanya,Ripoll-Vera Tomas,Rocha Lopes Luis,Saad Aly,Sala Simone,Seferovic Petar M,Sepp Robert,Urbano-Moral Jose Angel,Villacorta Eduardo,Wybraniec Maciej,Yotti Raquel,Zachara Elisabetta,Zorio Esther,

Affiliation:

1. Centre de Référence des Maladies Cardiaques Héréditaires, Assistance Publique-Hôpitaux de Paris, ICAN, Hôpital Pitié-Salpêtrière, 47 Bvd de l’hôpital, 75013 Paris, France

2. Université Versailles Saint Quentin & AP-HP, CESP, INSERM U1018, Hôpital Ambroise Paré, 9, Avenue Charles de Gaulle, 92100 Boulogne-Billancourt, France

3. University College London and Inherited Cardiac Diseases Unit, Barts Heart Centre, St Bartholomew’s Hospital, West Smithfield, EC1A 7BE London, UK

4. Cardiac Department, Hospital Universitario Virgen de la Arrixaca, Ctra. Murcia-Cartagena s/n, 30120 El Palmar Murcia, Spain

5. CIBER in Cardiovascular Diseases, Instituto Carlos III, Av. de Monforte de Lemos 5, 28029 Madrid, Spain

6. Division of Cardiology, Department of Cardiological Thoracic and Vascular Sciences, University of Padova, via N Giustiniani 2, 35100 Padova, Italy

7. Centre for Inherited Cardiovascular Diseases, Great Ormond Street Hospital, Great Ormond Street, WC1N 3JH London, UK

8. GVM Care and Research, E.S. Health Science Foundation, Maria Cecilia Hospital, Via Corriera, 1, 48010 Cotignola, Italy

9. Department of Cardiology and Structural Heart Diseases, School of Medicine in Katowice, Medical University of Silesia, Ziolowa Street 45/47, 40-635 Katowice, Poland

10. EURObservational Research Programme, European Society of Cardiology, 2035 Route des colles, CS 80179 Biot, 06903 Sophia-Antipolis Cedex, France

11. Department of Cardiac and Vascular Diseases, John Paul II Hospital, Institute of Cardiology, Jagiellonian University Medical College, Pradnicka street 80, 31-202 Krakow, Poland

12. Institute of Emergency for Cardiovascular Diseases “Prof.dr.C.C.Iliescu”, UMF “Carol Davila”, Sos. Fundeni 258, 22328 Bucharest, Romania

13. Policlinico Casilino, U.O. Cardiologia, Via Casilina, 1049, 00169 Roma, Italy

14. Heart and Lung Center, Helsinki University Hospital and University of Helsinki, Haartmaninkatu 4, 00290 Helsinki, Finland

15. Cardiovascular Department, Center for Cardiomyopathies, Azienda Sanitaria Universitaria Integrata, University of Trieste, Via P. Valdoni 7, 34100 Trieste, Italy

16. University Hospital Medical Center Bezanijska kosa, Faculty of Medicine, University of Belgrade, Dragise Brasovana 13/8, 11077 Belgrade, Serbia

17. Lithuanian University of Health Sciences, Eiveniu Str. 2, 50009 Kaunas, Lithuania

18. Department for Internal Medicine B, University Medicine Greifswald, Ferdinand-Sauerbruch Strasse, 17475 Greifswald, Germany

19. DZHK (German Centre for Cardiovascular Research), partner site Greifswald, Greifswald, Germany

20. Department of Cardiomyopathies, Institute of Cardiology, Alpejska 42, 04-628 Warsaw, Poland

21. Department of Advanced Biomedical Sciences, University Federico II of Naples, Via S. Pansini 5, 80131 Naples, Italy

22. Department of Cardiology, Division Heart & Lungs, UMC Utrecht, 3508 GA Utrecht, The Netherlands

23. Institute of Cardiovascular Science, Faculty of Population Health Sciences, University College London, Gower Street, WC1E 6BT London, UK

24. Heart failure and familial cardiomyopathies division, Cardiology department, Hospital Universitario Virgen de la Victoria, IBIMA, Campus Universitario Teatinos, 29010 Málaga, Spain

25. Cardiomyopathy, Heart Failure and Transplant Program, Hospital Universistari de Bellvitge, Heart Diseases Institute, Av. Feixa Llarga s/n, 08907 L’Hospitalet de Llobregat, Barcelona, Spain

26. First Department of Cardiology, School of Medicine in Katowice, Medical University of Silesia, Ochojec, Ziolowa Street 45/47, 40-635 Katowice, Poland

27. ANMCO Research Center, Via La Marmora, 34 50121 Firenze, Italy

Publisher

Oxford University Press (OUP)

Subject

Cardiology and Cardiovascular Medicine

Reference22 articles.

1. Classification of the cardiomyopathies: a position statement from the European Society Of Cardiology Working Group on Myocardial and Pericardial Diseases;Elliott;Eur Heart J,2007

2. . Contemporary definitions and classification of the cardiomyopathies: an American Heart Association Scientific Statement from the Council on Clinical Cardiology, Heart Failure and Transplantation Committee; Quality of Care and Outcomes Research and Functional Genomics and Translational Biology Interdisciplinary Working Groups; and Council on Epidemiology and Prevention;Maron;Circulation,2006

3. Dilated cardiomyopathy;Weintraub;Lancet,2017

4. Hypertrophic obstructive cardiomyopathy;Veselka;Lancet,2017

5. Restrictive cardiomyopathy;Mogensen;Curr Opin Cardiol,2009

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