The ERA-EDTA Registry Annual Report 2018: a summary

Author:

Kramer Anneke1ORCID,Boenink Rianne1,Stel Vianda S1,Santiuste de Pablos Carmen23,Tomović Filip4,Golan Eliezer5,Kerschbaum Julia6,Seyahi Nurhan7,Ioanou Kyriakos89,Beltrán Palma10,Zurriaga Oscar11121314,Magaz Ángela15,Slon Roblero María F16,Gjorgjievski Nikola1718,Garneata Liliana19,Arribas Federico20,Galvão Ana A21,Bell Samira2223,Ots-Rosenberg Mai24,Muñoz-Terol José M25,Winzeler Rebecca26,Hommel Kristine27,Åsberg Anders28,Spustova Viera29,Palencia García María Ángeles30,Vazelov Evgueniy31,Finne Patrik3233,ten Dam Marc A G J34,Lopot František35,Trujillo-Alemán Sara36,Lassalle Mathilde37,Kolesnyk Mykola O38,Santhakumaran Shalini39,Idrizi Alma40,Andrusev Anton4142,Comas Farnés Jordi43,Komissarov Kirill44,Resić Halima45,Palsson Runolfur4647,Kuzema Viktorija484950,Garcia Bazaga Maria Angeles51,Ziginskiene Edita5253,Stendahl Maria54,Bonthuis Marjolein155,Massy Ziad A5657,Jager Kitty J1

Affiliation:

1. Department of Medical Informatics, ERA-EDTA Registry, UMC, University of Amsterdam, Amsterdam Public Health research institute, Amsterdam, The Netherlands

2. Department of Epidemiology, Murcia Renal Registry, Murcia Regional Health Authority, IMIB-Arrixaca, Murcia, Spain

3. CIBER Epidemiología y Salud Pública (CIBERESP), Madrid, Spain

4. Clinical Center of Montenegro, Clinic for Nephrology, Podgorica, Montenegro

5. Israel Renal Registry, Sackler Faculty of Medicine, Tel-Aviv University, Tel-Aviv, Israel

6. Department of Internal Medicine IV—Nephrology and Hypertension, Austrian Dialysis and Transplant Registry, Medical University Innsbruck, Innsbruck, Austria

7. Department of Nephrology, Istanbul University-Cerrahpasa, Cerrahpasa Medical Faculty, Istanbul, Turkey

8. Cyprus Renal Registry, Nicosia, Cyprus

9. Department of Nephrology, American Medical Center, Nicosia, Cyprus

10. RERCA, Public Health Directorate, Asturias, Spain

11. Valencia Region Renal Registry, Direccio General de Salut Publica i Adiccions, Valencia, Spain

12. Department of Preventive Medicine and Public Health, Universitat de Valencia, Valencia, Spain

13. Rare Diseases Joint Research Unit Universitat de Valencia-Foundation for the Promotion of Health and Biomedical Research in the Valencian Region, FISABIO, Valencia, Spain

14. Spanish Consortium for Research on Epidemiology and Public Health (CIBERESP), Madrid, Spain

15. Unidad de Información de Pacientes Renales—UNIPAR, Basque Country, Spain

16. Complejo Hospitalario de Navarra, Pamplona, Navarra, Spain

17. University Hospital of Nephrology, Skopje, N. Macedonia

18. Faculty of Medicine, University Ss “Cyril and Methodius” Skopje, Skopje, N. Macedonia

19. Department of Internal Medicine and Nephrology, “Carol Davila” University of Medicine and Pharmacy, Bucharest, Romania

20. Department of Aragon Health, General Direction of Health Care, Zaragoza, Spain

21. Portuguese Renal Registry, Coimbra, Portugal

22. Scottish Renal Registry, Meridian Court, Information Services Division Scotland, Glasgow, UK

23. Division of Population Health and Genomics, University of Dundee, Dundee, UK

24. Department of Internal Medicine, University of Tartu, Tartu University Hospital, Tartu, Estonia

25. Department of Nephrology, Hospital University Virgen del Rocio, Seville, Spain

26. Institute of Nephrology, City Hospital Waid and Triemli, Zurich, Switzerland

27. Department of Medicine, Holbaek Hospital, Holbaek, Denmark

28. Department of Transplantation, Oslo University Hospital, Rikshospitalet, Oslo, Norway

29. Department of experimental and clinical pharmacotherapy, Slovak Medical University, Bratislava, Slovakia

30. Coordinación Autonómica de Trasplantes de Castilla y León, Dirección General de Planificación y Asistencia Sanitaria, Regional de Salud, Valladolid, Spain

31. Dialysis clinic, “Alexandrovska” University Hospital, Sofia Medical University, Sofia, Bulgaria

32. Abdominal Center Nephrology, University of Helsinki and Helsinki University Hospital, Helsinki, Finland

33. Finnish Registry for Kidney Diseases, Helsinki, Finland

34. Dutch Registry RENINE, Nefrovsie, Utrecht, The Netherlands

35. Department of Medicine, General University Hospital Prague, Strahov, Czech Republic

36. Health Quality Assessment and Information System Service, Dirección General de Programas Asistenciales, Servicio Canario de la Salud, Canary Islands, Spain

37. REIN Registry, Agence de la Biomédecine, Saint-Denis La Plaine, France

38. State Institute of Nephrology, National Academy of Medical Sciences of Ukraine, Kiev, Ukraine

39. UK Renal Registry, Bristol, UK

40. Service of Nephrology, UHC Mother Teresa, Tirana, Albania

41. Chronic Dialysis, Russia & CIS Medical Department, Company “Baxter” AO, Moscow, Russia

42. Renal Replacement Registry, Russian Dialysis Society, Moscow, Russia

43. Health Department, Catalan Renal Registry, Catalan Transplant Organization, Generalitat of Catalonia, Barcelona, Spain

44. Minsk Scientific and Practical Center of Surgery, Transplantation and Hematology, Minsk, Belarus

45. Clinic of Nephrology, Clinical Center, University of Sarajevo, Sarajevo, Bosnia-Herzegovina

46. Division of Nephrology, Landspitali– The National University Hospital of Iceland, Reykjavik, Iceland

47. Faculty of Medicine, School of Health Sciences, University of Iceland, Reykjavik, Iceland

48. Department of Nephrology, Riga Stradins clinical University Hospital, Riga, Latvia

49. Department of Internal Medicine, Riga Stradins University, Riga, Latvia

50. Latvian Nephrology Association, Riga, Latvia

51. Dirección General de Salud Pública, Servicio Extremeño de Salud, Consejería de Sanidad y Políticas Sociales, Junta de Extremadura, Mérida, Spain

52. Lithuanian Nephrology, Dialysis and Transplantation Association, Kaunas, Lithuania

53. Department of Nephrology, Medical Academy, Lithuanian University of Health Sciences, Kaunas, Lithuania

54. Department of Internal Medicine, Swedish Renal Registry, Jonkoping Regional Hospital, Jonkoping, Sweden

55. Department of Medical Informatics, SPN/ERA-EDTA Registry, UMC, University of Amsterdam, Amsterdam Public Health Research Institute, Amsterdam, The Netherlands

56. Division of Nephrology, Ambroise Paré University Hospital, Boulogne-Billancourt, France

57. Institut National de la Santé et de la Recherche Médicale (INSERM) Unit, 1018 Team 5, Research Centre in Epidemiology and Population Health (CESP), University of Paris Ouest-Versailles-St Quentin-en-Yveline, Villejuif, France

Abstract

Abstract Background The European Renal Association – European Dialysis and Transplant Association (ERA-EDTA) Registry collects data on kidney replacement therapy (KRT) via national and regional renal registries in Europe and countries bordering the Mediterranean Sea. This article summarizes the 2018 ERA-EDTA Registry Annual Report, and describes the epidemiology of KRT for kidney failure in 34 countries. Methods Individual patient data on patients undergoing KRT in 2018 were provided by 34 national or regional renal registries and aggregated data by 17 registries. The incidence and prevalence of KRT, the kidney transplantation activity and the survival probabilities of these patients were calculated. Results In 2018, the ERA-EDTA Registry covered a general population of 636 million people. Overall, the incidence of KRT for kidney failure was 129 per million population (p.m.p.), 62% of patients were men, 51% were ≥65 years of age and 20% had diabetes mellitus as cause of kidney failure. Treatment modality at the onset of KRT was haemodialysis (HD) for 84%, peritoneal dialysis (PD) for 11% and pre-emptive kidney transplantation for 5% of patients. On 31 December 2018, the prevalence of KRT was 897 p.m.p., with 57% of patients on HD, 5% on PD and 38% living with a kidney transplant. The transplant rate in 2018 was 35 p.m.p.: 68% received a kidney from a deceased donor, 30% from a living donor and for 2% the donor source was unknown. For patients commencing dialysis during 2009–13, the unadjusted 5-year survival probability was 42.6%. For patients receiving a kidney transplant within this period, the unadjusted 5-year survival probability was 86.6% for recipients of deceased donor grafts and 93.9% for recipients of living donor grafts.

Funder

ERA-EDTA

Publisher

Oxford University Press (OUP)

Subject

Transplantation,Nephrology

Reference2 articles.

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