A roadmap for optimizing chronic kidney disease patient care and patient-oriented research in the Eastern European nephrology community

Author:

Sever Mehmet Şükrü1ORCID,Jager Kitty J2,Vanholder Raymond34,Stengel Benedicte5,Harambat Jerome67,Finne Patrik8,Tesař Vladimir9,Barbullushi Myftar10,Bumblytė Inga A11,Zakharova Elena12ORCID,Spasovski Goce13,Resic Halima14ORCID,Wiecek Andrzej15,Blankestijn Peter J16ORCID,Bruchfeld Annette1718,Cozzolino Mario19ORCID,Goumenos Dimitris20,Soler Maria Jose21ORCID,Rychlík Ivan22ORCID,Stevens Kate I23ORCID,Wanner Christoph24,Zoccali Carmine25,Massy Ziad A26

Affiliation:

1. Department of Nephrology, Istanbul School of Medicine, Istanbul University, Istanbul, Turkey

2. ERA-EDTA Registry, Department of Medical Informatics, Amsterdam Public Health Research Institute Amsterdam, Noord-Holland, The Netherlands

3. Nephrology Section, Department of Internal Medicine and Pediatrics, University Hospital Ghent, Gent, Belgium

4. European Kidney Health Alliance (EKHA), Brussels, Belgium

5. UVSQ, University Paris-Saclay, University Paris-Sud, Inserm, Clinical Epidemiology Team, CESP, Villejuif, France

6. Pediatric Nephrology Unit, Bordeaux University Hospital, Bordeaux, France

7. University of Bordeaux, INSERM U1219, Bordeaux, France

8. Helsinki University Central Hospital, Division of Nephrology, Helsinki, 00029, Finland

9. Department of Nephrology, General University Hospital, Charles University, Prague 12808, Czech Republic

10. Department of Nephrology, University of Tirana, Tirana, Albania

11. Nephrology Department, Faculty of Medicine, Lithuanian University of Health Sciences, Kaunas, Lithuania

12. Nephrology Unit, City Clinical Hospital n.a. s.P. Botkin, 2-nd Botkinsky proezd 5, Moscow, Russia

13. Department of Nephrology, University “Sts. Cyril and Methodius”, Vodnjanska 17 Skopje, MK, Republic of Macedonia

14. Society of Nephrology of Bosnia and Herzegovina, Clinic for Hemodialysis Sarajevo, Clinical Center University of Sarajevo, BA, Bosnia-Herzegovina

15. Department of Nephrology, Transplantation and Internal Medicine, Medical University of Silesia, Katowice, Poland

16. Department of Nephrology, University Medical Center, Utrecht, Utrecht, The Netherlands

17. Department of Health, Medicine and Caring Sciences, Linköping University, Faculty of Medicine, Linköping, Sweden

18. Department of Renal Medicine, Karolinska University Hospital, CLINTEC KI, Stockholm, SE 141 86, Sweden

19. University of Milan, Health Sciences via di rudinì 8 Milano, Lombardia, IT 20122, Italy

20. Department of Nephrology, Patras University Hospital, Rio 265 04, Patras, Greece

21. Department of Nephrology, Vall d'Hebron Hospital Universitari, Vall d'Hebron Barcelona Hospital Campus, Barcelona, Spain

22. Department of Medicine, Third Faculty of Medicine, Charles University and Faculty Hospital Kralovske Vinohrady,Prague, Czech Republic

23. The Glasgow Renal and Transplant Unit, Queen Elizabeth University Hospital, Glasgow, G51 4TF, UK

24. Division of Nephrology, University Hospital Würzburg, Oberdürrbacherstr. 6, Würzburg 97080, Germany

25. IFC Sezione di Reggio Calabria CNR, Clinical Epidemiology of Renal Diseases and Hypertension Reggio Calabria, Calabria, Italy

26. Division of Nephrology, Ambroise Paré University Hospital, APHP, University of Paris Ouest-Versailles-St-Quentin-en-Yvelines (UVSQ) av G De Gaulles Boulogne-Billancourt/Paris, x, FR 92100; Inserm U1018, CESP Team 5-Epidemiology of Renal and Cardiovascular Disease, Villejuif, France

Abstract

Abstract Chronic kidney disease (CKD) is a major health problem because of its high prevalence, associated complications and high treatment costs. Several aspects of CKD differ significantly in the Eastern European nephrology community compared with Western Europe because of different geographic, socio-economic, infrastructure, cultural and educational features. The two most frequent aetiologies of CKD, DM and hypertension, and many other predisposing factors, are more frequent in the Eastern region, resulting in more prevalent CKD Stages 3–5. Interventions may minimize the potential drawbacks of the high prevalence of CKD in Eastern Europe, which include several options at various stages of the disease, such as raising public, medical personnel and healthcare authorities awareness; early detection by screening high-risk populations; preventing progression and CKD-related complications by training health professionals and patients; promoting transplantation or home dialysis as the preferred modality; disseminating and implementing guidelines and guided therapy and encouraging/supporting country-specific observational research as well as international collaborative projects. Specific ways to significantly impact CKD-related problems in every region of Europe through education, science and networking are collaboration with non-nephrology European societies who have a common interest in CKD and its associated complications, representation through an advisory role within nephrology via national nephrology societies, contributing to the training of local nephrologists and stimulating patient-oriented research. The latter is mandatory to identify country-specific kidney disease–related priorities. Active involvement of patients in this research via collaboration with the European Kidney Patient Federation or national patient federations is imperative to ensure that projects reflect specific patient needs.

Publisher

Oxford University Press (OUP)

Subject

Transplantation,Nephrology

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