Decision aids to assist patients and professionals in choosing the right treatment for kidney failure

Author:

Bekker Hilary L123ORCID,Winterbottom Anna E14ORCID,Gavaruzzi Teresa5,Finderup Jeanette367ORCID,Mooney Andrew14

Affiliation:

1. Leeds Unit of Complex Intervention Development (LUCID), Leeds Institute of Health Sciences, School of Medicine, University of Leeds , Leeds, UK

2. Department of Public Health, Aarhus University , Denmark

3. ResCenPI – Research Centre for Patient Involvement, Aarhus University, Aarhus and the Central Denmark Region , Denmark

4. Renal Unit, St James's University Hospital, Leeds Teaching Hospital Trust , Leeds , UK

5. Department of Medical and Surgical Sciences (DIMEC), University of Bologna , Bologna , Italy

6. Department of Renal Medicine, Aarhus University Hospital , Aarhus , Denmark

7. Department of Clinical Medicine, Aarhus University , Aarhus , Denmark

Abstract

ABSTRACTBackgroundKidney services vary in the way they involve people with kidney failure (PwKF) in treatment decisions as management needs change. We discuss how decision-science applications support proactively PwKF to make informed decisions between treatment options with kidney professionals.MethodsA conceptual review of findings about decision making and use of decision aids in kidney services, synthesized with reference to: the Making Informed Decisions—Individually and Together (MIND-IT) multiple stakeholder decision makers framework; and the Medical Research Council—Complex Intervention Development and Evaluation research framework.ResultsThis schema represents the different types of decision aids that support PwKF and professional reasoning as they manage kidney disease individually and together; adjustments at micro, meso and macro levels supports integration in practice.ConclusionInnovating services to meet clinical guidelines on enhancing shared decision making processes means enabling all stakeholders to use decision aids to meet their goals within kidney pathways at individual, service and organizational levels.

Publisher

Oxford University Press (OUP)

Subject

Transplantation,Nephrology

Reference171 articles.

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4. Practical aspects of shared decision making: people living with frailty & chronic kidney disease;Bekker;Royal Society of Medicine Geriatric Nephrology Symposium,21 2021

5. How to routinely collect data on patient-reported outcome and experience measures in renal registries in Europe: an expert consensus meeting;Breckenridge;Nephrol Dial Transplant,2015

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