The ERA Registry Annual Report 2020: a summary

Author:

Astley Megan E12,Boenink Rianne13,Abd ElHafeez Samar14,Trujillo-Alemán Sara5,Arribas Federico6,Åsberg Anders7,Beckerman Pazit8,Bell Samira910,Bouzas-Caamaño María Encarnación11,Farnés Jordi Comas12,Galvão Ana Amélia13,Gjorgjievski Nikola1415,Kelmendi Vjollca Godanci16,Guidotti Rebecca17,Helve Jaakko18,Idrizi Alma19,Indriðason Ólafur S20,Ioannou Kyriakos21,Kerschbaum Julia22,Komissarov Kirill23,Castro de la Nuez Pablo24,Lassalle Mathilde25,Nordio Maurizio26,Arévalo Olga Lucía Rodríguez2728,Santiuste Carmen2930,Seyahi Nurhan31,Roblero María Fernanda Slon32,Steenkamp Retha33,ten Dam Marc A G J34,Zakharova Elena V3536,Ziginskiene Edita3738,Bonthuis Marjolein13940,Stel Vianda S13,Ortiz Alberto4142,Jager Kitty J13,Kramer Anneke1

Affiliation:

1. ERA Registry, Department of Medical Informatics, Amsterdam UMC location University of Amsterdam , Amsterdam , The Netherlands

2. Amsterdam Public Health, Health Behaviours & Chronic Diseases and Methodology , Amsterdam , The Netherlands

3. Amsterdam Public Health, Quality of Care and Ageing & Later Life , Amsterdam , The Netherlands

4. Epidemiology Department, High Institute of Public Health, Alexandria University , Alexandria , Egypt

5. Health Quality Assessment and Information System Service, Dirección General de Programas Asistenciales, Servicio Canario de la Salud , Canary Islands , Spain

6. Department of Aragon Health, General Direction of Health Care , Zaragoza , Spain

7. The Norwegian Renal Registry, Department of Transplantation Medicine, Oslo University Hospital – Rikshospitalet , Oslo , Norway

8. Sheba Medical Center, Ramat Gan, and School of Medicine, Tel Aviv University , Tel Aviv, Israel

9. Scottish Renal Registry, Public Health Scotland , Glasgow , UK

10. Division of Population Health & Genomics, University of Dundee, Ninewells Hospital , Dundee , United Kingdom

11. Regional Transplant Coordination of Galicia, Galician Health Service , Santiago de Compostela , Spain

12. Catalan Renal Registry, Catalan Transplant Organization, Health Department, Generalitat of Catalonia , Barcelona , Spain

13. Portuguese Society of Nephrology , Coimbra , Portugal

14. Hospital of Nephrology , Skopje, N. Macedonia

15. Faculty of Medicine, University “SS Cyril and Methodius” Skopje , Skopje, N. Macedonia

16. Nephrology Clinic, University Clinical Centre of Kosova , Prishtina , Kosova

17. Institute of Nephrology, City Hospital Zurich , Zurich , Switzerland

18. Finnish Registry for Kidney Diseases and Abdominal Center Nephrology, University of Helsinki and Helsinki University Central Hospital , Helsinki , Finland

19. Service of Nephrology, UHC Mother Teresa , Tirana , Albania

20. Division of Nephrology, Landspitali–The National University Hospital of Iceland , Reykjavik , Iceland

21. Cyprus Renal Registry , Nicosia , Cyprus

22. Austrian Dialysis and Transplant Registry, Department of Internal Medicine IV–Nephrology and Hypertension, Medical University Innsbruck , Innsbruck , Austria

23. Minsk Scientific and Practical Center of Surgery, Transplantation and Hematology , Minsk , Belarus

24. SICATA: Information System of the Autonomous Coordination of Transplants of Andalusia , Seville, Andalucia , Spain

25. REIN Registry, Agence de la Biomédecine , Saint-Denis La Plaine , France

26. Division of Nephrology, AULSS 2, Treviso General Hospital , Treviso , Italy

27. Registry of Renal Patients of the Valencian Community, General Directorate of Public Health and Addictions, Ministry of Universal Health and Public Health , Valencia , Spain

28. Health and Well-being Technologies Program, Polytechnic University of Valencia , Valencia , Spain

29. Murcia Renal Registry, Department of Epidemiology, Murcia Regional Health Council, IMIB-Arrixaca , Murcia , Spain

30. CIBER Epidemiología y Salud Pública (CIBERESP) , Madrid , Spain

31. Department of Nephrology, Cerrahpaşa Medical Faculty, Istanbul University-Cerrahpaşa , Istanbul , Turkey

32. Hospital Universitario de Navarra , Pamplona, Navarra , Spain

33. UK Renal Registry , Bristol , UK

34. Dutch Registry RENINE , Nefrovisie, Utrecht , The Netherlands

35. Nephrology, Botkin Hospital , Moscow , Russia

36. Nephrology and Hemodialysis, Russian Medical Academy of Continuing Professional Education , Moscow , Russia

37. Lithuanian Nephrology, Dialysis and Transplantation Association , Kaunas , Lithuania

38. Nephrology Department, Medical Academy, Lithuanian University of Health Sciences , Kaunas , Lithuania

39. Amsterdam Public Health, Quality of Care , Amsterdam , The Netherlands

40. ESPN/ERA Registry, Amsterdam UMC location University of Amsterdam, Department of Medical Informatics , Amsterdam , The Netherlands

41. Department of Nephrology and Hypertension, IIS-Fundacion Jimenez Diaz UAM , Madrid , Spain

42. Department of Medicine, Universidad Autonoma de Madrid , Madrid , Spain

Abstract

ABSTRACT Background The European Renal Association (ERA) Registry collects data on kidney replacement therapy (KRT) in patients with ESKD. This paper is a summary of the ERA Registry Annual Report 2020, also including comparisons among primary renal disease (PRD) groups. Methods Data were collected from 52 national and regional registries from 34 European countries and countries bordering the Mediterranean Sea: 35 registries from 18 countries providing individual level data and 17 registries from 17 countries providing aggregated data. Using this data, KRT incidence and prevalence, kidney transplantation rates, expected remaining lifetimes and survival probabilities were calculated. Results A general population of 654.9 million people was covered by the ERA Registry in 2020. The overall incidence of KRT was 128 per million population (p.m.p.). In incident KRT patients, 54% were older than 65 years, 63% were men and the most common PRD was diabetes mellitus (21%). Regarding initial treatment modality in incident patients, 85% received haemodialysis (HD), 11% received peritoneal dialysis (PD) and 4% received a pre-emptive kidney transplant. On 31 December 2020, the prevalence of KRT was 931 p.m.p. In prevalent patients, 45% were older than 65 years, 60% were men and glomerulonephritis was the most common PRD (18%). Of these patients, 58% were on HD, 5% on PD and 37% were living with a kidney transplant. The overall kidney transplantation rate in 2020 was 28 p.m.p., with a majority of kidney grafts from deceased donors (71%). The unadjusted 5-year survival, based on incident dialysis patient from 2011–15, was 41.8%. For patients having received a deceased donor transplant, the unadjusted 5-year survival probability was 86.2% and for patients having received a living donor transplant it was 94.4%. When comparing data by PRD group, differences were found regarding the distribution of age groups, sex and treatment modality received.

Funder

European Renal Association

Landspitali University Hospital

Sistema Sanitario Público de Andalucía

Publisher

Oxford University Press (OUP)

Subject

Transplantation,Nephrology

Reference2 articles.

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