Data Resource Profile: The UK Cystic Fibrosis Registry

Author:

Taylor-Robinson David1,Archangelidi Olia2,Carr Siobhán B3,Cosgriff Rebecca4,Gunn Elaine4,Keogh Ruth H5,MacDougall Amy2,Newsome Simon5,Schlüter Daniela K6,Stanojevic Sanja7,Bilton Diana2,

Affiliation:

1. Department of Public Health and Policy, University of Liverpool, Liverpool, UK

2. National Heart and Lung Institute, Imperial College London, London, UK

3. Department of Paediatric Respiratory Medicine, Royal Brompton and Harefield NHS Foundation Trust, London

4. Cystic Fibrosis Trust, Aldgate, London, UK

5. Department of Medical Statistics, London School of Hygiene and Tropical Medicine, London, UK

6. Centre for Health Informatics, Computing and Statistics (CHICAS), Lancaster University, Lancaster, UK

7. Translational Medicine, Hospital for Sick Children and Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, ON, Canada

Funder

Cystic Fibrosis Trust

MRC

Publisher

Oxford University Press (OUP)

Subject

General Medicine,Epidemiology

Reference19 articles.

1. Cystic fibrosis mortality and survival in the UK: 1947–2003;Dodge;Eur Respir J,2007

2. Cystic fibrosis: current survival and population estimates to the year 2000;Elborn;Thorax

3. Potential benefits of the UK Cystic Fibrosis Database;Mehta;J R Soc Med,2004

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