Outcome measures from international older adult care home intervention research: a scoping review

Author:

Kelly Sarah12,Cowan Andy1,Akdur Gizdem3,Irvine Lisa3,Peryer Guy45,Welsh Silje6,Rand Stacey7,Lang Iain A89,Towers Ann-Marie101112,Spilsbury Karen1314,Killett Anne45,Gordon Adam Lee151617,Hanratty Barbara1819,Jones Liz20,Meyer Julienne2021,Goodman Claire35,Burton Jennifer Kirsty6

Affiliation:

1. Cambridge Public Health, University of Cambridge , East Forvie Site, Robinson Way, Cambridge CB2 0SR , UK

2. THIS Institute, University of Cambridge, Clifford Allbutt Building, Cambridge Biomedical Campus , Cambridge CB2 0AH , UK

3. Centre for Research in Public Health and Community Care, University of Hertfordshire , College Lane, Hatfield AL10 9AB , UK

4. School of Health Sciences, University of East Anglia , Norwich Research Park, Norwich NR4 7TJ , UK

5. NIHR Applied Research Collaboration , East of England, CB2 8AH , UK

6. School of Cardiovascular and Metabolic Health, University of Glasgow, New Lister Building, Glasgow Royal Infirmary , Alexandra Parade, Glasgow G31 2ER , UK

7. Personal Social Services Research Unit, University of Kent , Cornwallis Central, Canterbury CT2 7NF , UK

8. Department of Health and Community Sciences, University of Exeter, St Luke’s Campus , Exeter EX1 2LU , UK

9. NIHR Applied Research Collaboration , South West Peninsula, EX1 2LU , UK

10. Centre for Health Services Studies , Cornwallis Central, , Canterbury CT2 7NF , UK

11. University of Kent , Cornwallis Central, , Canterbury CT2 7NF , UK

12. NIHR Applied Research Collaboration , Kent Surrey and Sussex, BN3 7HZ , UK

13. School of Healthcare, University of Leeds , Baines Wing, Leeds LS2 9JT , UK

14. NIHR Applied Research Collaboration , Yorkshire and Humber, BD9 6RJ , UK

15. Unit of Injury , Recovery and Inflammation Sciences (IRIS), School of Medicine, , Uttoxeter Road, Derby DE22 3DT , UK

16. University of Nottingham, Royal Derby Hospital , Recovery and Inflammation Sciences (IRIS), School of Medicine, , Uttoxeter Road, Derby DE22 3DT , UK

17. NIHR Applied Research Collaboration , East Midlands, LE5 4PW , UK

18. Population Health Sciences Institute, Newcastle University, Campus for Ageing and Vitality , Newcastle-upon-Tyne NE4 5PL , UK

19. NIHR Applied Research Collaboration , North East and North Cumbria, NE3 3XT , UK

20. National Care Forum , Friars House, Manor House Drive, Coventry CV1 2TE , UK

21. City, University of London , Northampton Square, London EC1V 0HB , UK

Abstract

Abstract Background Care homes are increasingly important settings for intervention research to enhance evidence-informed care. For such research to demonstrate effectiveness, it is essential that measures are appropriate for the population, setting and practice contexts. Objective To identify care home intervention studies and describe the resident outcome measures used. Design Scoping review. Methods We reviewed international care home research published from 2015 to August 2022. We searched MEDLINE, EMBASE, CINAHL and ASSIA. We included any intervention study conducted in a care home, reporting resident outcomes. We extracted resident outcome measures, organised these using the domains of an adapted framework and described their use. Results From 7,330 records screened, we included 396 datasets reported in 436 publications. These included 12,167 care homes and 836,842 residents, with an average of 80 residents per study. The studies evaluated 859 unique resident outcomes 2,030 times using 732 outcome measures. Outcomes were evaluated between 1 and 112 times, with 75.1% of outcomes evaluated only once. Outcome measures were used 1–120 times, with 68.4% of measures used only once. Only 14 measures were used ≥20 times. Functional status, mood & behaviour and medications were the commonest outcome domains assessed. More than half of outcomes were assessed using scales, with a fifth using existing records or administrative data. Conclusions There is significant heterogeneity in the choice and assessment of outcomes for intervention research in care homes. There is an urgent need to develop a consensus on useful and sensitive tools for care homes, working with residents, families and friends and staff.

Funder

National Institute for Health and Care Research

Publisher

Oxford University Press (OUP)

Subject

Geriatrics and Gerontology,Aging,General Medicine

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