Feasibility and acceptability of NIDUS-professional, a training and support intervention for homecare workers caring for clients living with dementia: a cluster-randomised feasibility trial

Author:

Cooper Claudia1ORCID,Zabihi Sedigheh1,Akhtar Amirah1,Lee Teresa1,Isaaq Abdinasir1,Le Novere Marie1,Barber Julie1,Lord Kathryn1,Rapaport Penny1,Banks Sara1,Duggan Sandra1,Ogden Margaret1,Walters Kate1,Orgeta Vasiliki1ORCID,Rockwood Kenneth1,Butler Laurie T1,Manthorpe Jill1,Dow Briony1,Hoe Juanita1,Hunter Rachael1,Banerjee Sube1,Budgett Jessica1,Duffy Larisa1

Affiliation:

1. Centre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University London , London E1 2AB , UK

Abstract

Abstract Introduction In the first randomised controlled trial of a dementia training and support intervention in UK homecare agencies, we aimed to assess: acceptability of our co-designed, manualised training, delivered by non-clinical facilitators; outcome completion feasibility; and costs for a future trial. Methods This cluster-randomised (2:1) single-blind, feasibility trial involved English homecare agencies. Intervention arm agency staff were offered group videocall sessions: 6 over 3 months, then monthly for 3 months (NIDUS-professional). Family carers (henceforth carers) and clients with dementia (dyads) were offered six to eight complementary, individual intervention sessions (NIDUS-Family). We collected potential trial measures as secondary outcomes remotely at baseline and 6 months: HCW (homecare worker) Work-related Strain Inventory (WRSI), Sense of Competence (SoC); proxy-rated Quality of Life (QOL), Disability Assessment for Dementia scale (DAD), Neuropsychiatric Inventory (NPI) and Homecare Satisfaction (HCS). Results From December 2021 to September 2022, we met agency (4 intervention, 2 control) and HCWs (n = 62) recruitment targets and recruited 16 carers and 16/60 planned clients. We met a priori progression criteria for adherence (≥4/6 sessions: 29/44 [65.9%,95% confidence interval (CI): 50.1,79.5]), HCW or carer proxy-outcome completion (15/16 (93.8% [69.8,99.8]) and proceeding with adaptation for HCWs outcome completion (46/63 (73.0% [CI: 60.3,83.4]). Delivery of NIDUS-Professional costs was £6,423 (£137 per eligible client). WRSI scores decreased and SoC increased at follow-up, with no significant between-group differences. For intervention arm proxy-rated outcomes, carer-rated QOL increased, HCW-rated was unchanged; carer and HCW-rated NPI decreased; DAD decreased (greater disability) and HCS was unchanged. Conclusion A pragmatic trial is warranted; we will consider using aggregated, agency-level client outcomes, including neuropsychiatric symptoms.

Funder

Alzheimer’s Society Centre of Excellence for Independence at Home

Dementia and Neurodegenerative

NIHR

National Institute for Health and Care Research (NIHR) Applied Research Collaboration South West Peninsula

Publisher

Oxford University Press (OUP)

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