Providing guidance in the dark: rare renal diseases and the challenge to improve the quality of evidence
Author:
Publisher
Oxford University Press (OUP)
Subject
Transplantation,Nephrology
Link
http://academic.oup.com/ndt/article-pdf/29/9/1628/7638364/gft344.pdf
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1. Orphan Kidney Diseases
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3. CureGN Study Rationale, Design, and Methods: Establishing a Large Prospective Observational Study of Glomerular Disease;American Journal of Kidney Diseases;2019-02
4. Using a meta-narrative literature review and focus groups with key stakeholders to identify perceived challenges and solutions for generating robust evidence on the effectiveness of treatments for rare diseases;Orphanet Journal of Rare Diseases;2018-06-28
5. Systematic DNA Study for Fabry Disease in the End Stage Renal Disease Patients from a Southern Italy Area;Kidney and Blood Pressure Research;2018
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