Peyronie’s disease questionnaire: translation into Danish and cultural adaptation

Author:

Wiborg Majken H12,Laursen Birgitte S34,Kallestrup Else B12,Krøijer Rasmus25,Lund Lars26

Affiliation:

1. University Hospital of Southern Denmark Department of Urology, Hospital of South West Jutland, , Esbjerg, Denmark

2. University of Southern Denmark Clinical Institute, , Odense, Denmark

3. Aalborg University Sexology Research Centre, Department of Clinical Medicine, , Aalborg, Denmark

4. Aalborg University Hospital Clinical Nursing Research Centre, , Aalborg, Denmark

5. University Hospital of Southern Denmark Department of Surgical Gastroenterology, Hospital of South West Jutland, , Esbjerg, Denmark

6. Odense University Hospital Department of Urology, , Odense, Denmark

Abstract

AbstractBackgroundPeyronie’s disease has an impact on men’s mental and physical health.AimWe sought to translate the Peyronie’s Disease Questionnaire into Danish, adapt it to the Danish cultural setting, and test it in a Danish population.MethodsTranslation of the Peyronie’s Disease Questionnaire was performed according to the guidelines for adapting health status measures for use in languages other than the source language by Beaton et al. The validated American Peyronie’s Disease Questionnaire was developed to monitor patient symptoms after an intervention and to inspire a subsequent dialogue about physical and psychological symptoms with a healthcare provider, thereby allowing the patient and the healthcare professional to choose the best treatment. The expert committee agreed on a Danish version after cross-cultural adaptation. The Danish Peyronie’s Disease Questionnaire was sent by electronic mail to a preselected group of 41 men with Peyronie’s disease.OutcomesAfter completing the questionnaire, 32 men participated in a video interview regarding the questionnaire and were asked to identify any problematic fields or areas open to misunderstanding.ResultsThe Peyronie’s Disease Questionnaire underwent major modifications in light of the comments of the first 10 respondents. Thereafter, only minor changes were made until data saturation was reached after 27 of the 32 respondents had been interviewed. In 87% of respondents Peyronie’s disease bothered from the last time they had intercourse, and 93% of the men experienced being bothered by having intercourse less often. Peyronie’s disease made 73% of respondents feel bodily discomfort, and 88% had intercourse less often than they used to have due to Peyronie’s disease.Clinical ImplicationsThe Peyronie’s Disease Questionnaire is a valuable tool in the crucial task of addressing Peyronie’s disease, providing insight into the mental and sexual health problems as well as physical challenges faced by patients.Strengths and LimitationsThe interviewer’s modest experience in conducting interviews is believed to have been duly compensated for by continuous and accumulating learning-while-doing process because the same interviewer conducted all of the interviews and did so consecutively.ConclusionsDanish men expressed satisfaction with the questionnaire and found it valuable as a tool when visiting the doctor for the first time.

Funder

Alice and Tage Sørensens

Region of Southern Denmark PhD Fund

Publisher

Oxford University Press (OUP)

Subject

Behavioral Neuroscience,Urology,Dermatology,Reproductive Medicine,Endocrinology,Endocrinology, Diabetes and Metabolism,Psychiatry and Mental health

Reference16 articles.

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