Impact of caring for someone with a rare rheumatic condition, views from patients and informal carers—the need for cat-like vigilance
Author:
Affiliation:
1. School of Health and Social Care, University of Staffordshire, Stafford, UK
2. Norwich Medical School, University of East Anglia, Norwich, UK
Funder
Vasculitis UK
Publisher
Oxford University Press (OUP)
Subject
Rheumatology
Link
http://academic.oup.com/rheumap/article-pdf/3/1/rkz003/28866198/rkz003.pdf
Reference48 articles.
1. Long-term patient survival in ANCA-associated vasculitis;Flossmann;Ann Rheum Dis,2011
2. Health-related quality of life in ANCA-associated vasculitis and item generation for a disease-specific patient-reported outcome measure;Robson;Patient Relat Outcome Meas,2018
3. Damage in the ANCA-associated vasculitides: long-term data from the European Vasculitis Study Group (EUVAS) therapeutic trials;Robson;Ann Rheum Dis,2015
4. ANCA-associated vasculitis and malignancy: current evidence for cause and consequence relationships;Mahr;Best Pract Res Clin Rheumatol,2013
5. Damage assessment in ANCA-associated vasculitis;Bhamra;Curr Rheumatol Rep,2012
Cited by 7 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献
1. How is the patient perspective captured in ANCA-associated vasculitis research? An integrative review;Rheumatology Advances in Practice;2023-01-01
2. Needs of informal caregivers of people with a rare disease: a rapid review of the literature;BMJ Open;2022-12
3. Informal Caregivers’ Perceptions of Self-Efficacy and Subjective Well-Being When Using Telecare in the Home Environment: A Qualitative Study;Geriatrics;2022-08-23
4. Understanding Current Needs and Future Expectations of Informal Caregivers for Technology to Support Health and Well-being: National Survey Study;JMIR Aging;2022-01-27
5. Being a caregiver of a Behçet’s syndrome patient: challenges and perspectives during a complex journey;Orphanet Journal of Rare Diseases;2021-10-18
1.学者识别学者识别
2.学术分析学术分析
3.人才评估人才评估
"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370
www.globalauthorid.com
TOP
Copyright © 2019-2024 北京同舟云网络信息技术有限公司 京公网安备11010802033243号 京ICP备18003416号-3