Human-centered design approach to building a transition readiness mHealth intervention for early adolescents

Author:

Carrera Diaz Kenia1,Yau Joanna23,Iverson Ellen45,Cuevas Rachel6,Porter Courtney6,Morales Luis7,Tut Maurice8,Santiago Adan6,Ghavami Soha6,Reich Emily1,Sayegh Caitlin S45

Affiliation:

1. Psychology Postdoctoral Fellowship, Children’s Hospital Los Angeles , Los Angeles, United States

2. University of Southern California Viterbi School of Engineering , Los Angeles, United States

3. Department of Psychology, University of Southern California , Los Angeles, United States

4. Division of Adolescent and Young Adult Medicine, Children’s Hospital Los Angeles , Los Angeles, United States

5. Department of Pediatrics, University of Southern California Keck School of Medicine , Los Angeles, United States

6. Center for Healthy Adolescent Transition, Children’s Hospital Los Angeles , Los Angeles, United States

7. Office of Patient Experience/Patient Family Education, Children’s Hospital Los Angeles , Los Angeles, United States

8. Translational Informatics/Information Services Department, Children’s Hospital Los Angeles , Los Angeles, United States

Abstract

Abstract Objective Mobile health (mHealth) interventions may be an efficacious strategy for promoting health behaviors among pediatric populations, but their success at the implementation stage has proven challenging. The purpose of this article is to provide a blueprint for using human-centered design (HCD) methods to maximize the potential for implementation, by sharing the example of a youth-, family-, and clinician-engaged process of creating an mHealth intervention aimed at promoting healthcare transition readiness. Method Following HCD methods in partnership with three advisory councils, we conducted semistructured interviews with 13- to 15-year-old patients and their caregivers in two phases. In Phase 1, participants described challenges during the transition journey, and generated ideas regarding the format, content, and other qualities of the mHealth tool. For Phase 2, early adolescents and caregivers provided iterative feedback on two sequential intervention prototypes. Data were analyzed using thematic analysis in Phase 1 and the rapid assessment process for Phase 2. Results We interviewed 11 youth and 8 caregivers. The sample included adolescents with a range of chronic health conditions. In Phase 1, participants supported the idea of developing an autonomy-building tool, delivering transition readiness education via social media style videos. In Phase 2, participants responded positively to the successive prototypes and provided suggestions to make information accessible, relatable, and engaging. Conclusions The procedures shared in this article could inform other researchers’ plans to apply HCD in collaboration with implementation partners to develop mHealth interventions. Our future directions include iteratively developing more videos to promote transition readiness and implementing the intervention in clinical care.

Funder

Children’s Hospital Los Angeles Center for Healthy Adolescent Transition

National Center for Advancing Translational Science

National Institutes of Health

Southern California Clinical and Translational Science Institute

USC University Center for Excellence in Developmental Disabilities

Leadership Education in Adolescent Health

Publisher

Oxford University Press (OUP)

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