Affiliation:
1. Nemours Center for Healthcare Delivery Science, Nemours Children’s Health System
2. Department of Pediatrics, Thomas Jefferson University
3. Department of Family and Community Nursing, University of Pennsylvania School of Nursing
Abstract
Abstract
Objective
Psychosocial intervention studies with parents often have difficulty with regard to participant recruitment, retention, and engagement. Prior to conducting a pilot test of the Electronic Surviving Cancer Competently Intervention Program (eSCCIP), a psychosocial eHealth intervention for parents of children with cancer, a qualitative study was designed to preemptively generate strategies to address potential difficulties in these domains.
Methods
Two focus groups and three semi-structured interviews were conducted with parents of children with cancer. Qualitative data were analyzed using the principles of thematic and content analysis. Themes were generated to describe results and inform the development of concrete recruitment, retention, and engagement strategies to be utilized in future intervention trials.
Results
Five themes emerged specific to recruitment, and three themes emerged related to retention and engagement. Parents highlighted a number of important potential recruitment, retention, and engagement strategies, including the importance of flexibility, ease of access and use, intervention timing, and pathways to follow-up care. Themes were linked to actionable recruitment, retention, and engagement strategies which can be utilized in future studies.
Conclusion
Results from the current study will be utilized when designing future eSCCIP intervention trials and will also be of use to the broader field of psychosocial eHealth intervention research in pediatric psychology. This study also underscores the importance of working with parent stakeholders at all phases of study design and implementation.
Funder
National Cancer Institute
National Institutes of Health
National Institute of General Medical Sciences
Publisher
Oxford University Press (OUP)
Subject
Developmental and Educational Psychology,Pediatrics, Perinatology, and Child Health
Cited by
17 articles.
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