Affiliation:
1. Department of Neuropsychology, Children’s Healthcare of Atlanta
2. Department of Psychology, Georgia State University
3. Department of Pediatrics, Emory University School of Medicine
Abstract
Abstract
Objective
Sickle cell disease (SCD) is a group of inherited blood disorders. The central feature of this chronic condition is pain. Several identified risk factors exacerbate the impact of pain on quality of life (QOL) in SCD; however, there are relatively fewer investigations of strengths-based resilience variables that might buffer the influence of pain on living with SCD. The purpose of this study was to examine strength-based resilience processes in youth with SCD and their parents. Grounded in an ecological resilience-risk model, we evaluated whether adolescent and parent protective factors (pain acceptance, mindfulness, and psychological flexibility) moderated the relation between adolescent-reported pain burden and QOL.
Methods
Ninety-three 12- to 18-year-old adolescents with SCD and their parents participated. Adolescents completed assessments of pain characteristics, pain acceptance, mindfulness, and QOL. Parents completed instruments measuring demographic and disease variables and parent psychological flexibility.
Results
Pain variables were associated with protective factors in predicted directions. Adolescent acceptance and mindfulness were positively correlated with QOL. Parent psychological flexibility and adolescent QOL were not related. After controlling for demographic, pain, and disease variables, moderation analyses indicated that adolescent pain acceptance buffered the relation between SCD pain burden and QOL. Moderation analyses were not significant for adolescent mindfulness or parent psychological flexibility.
Conclusions
Results suggest that strengths-based factors may play an important role for adolescents’ QOL within the context of SCD pain. Interventions that enhance teenagers’ ability to accept pain might be particularly useful to improve QOL in adolescents living with SCD pain.
Funder
Health Resources and Service Administration
Publisher
Oxford University Press (OUP)
Subject
Developmental and Educational Psychology,Pediatrics, Perinatology, and Child Health
Reference69 articles.
1. Mindfulness-based interventions among adolescents with chronic diseases in clinical settings: A systematic review;Abujaradeh;Journal of Pediatric Health Care,2018
2. Mindfulness-based interventions in clinical samples of adolescents with chronic illness: A systematic review;Ahola Kohut;The Journal of Alternative and Complementary Medicine,2017
3. Psychological therapies for sickle cell disease and pain;Anie;Cochrane Database of Systematic Reviews,2015
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