1. Sydney Children’s Hospital Randwick , Sydney, NSW , Australia
2. Center for Blistering Diseases, Department of Dermatology, University Medical Centre Groningen, University of Groningen , Groningen , the Netherlands
3. Great Ormond Street NHS Foundation Trust , London , UK
4. Sainte-Justine University Hospital Centre, and University of Montreal , Montreal, QC , Canada
5. Cincinnati Children’s Hospital Medical Centre , Cincinnati, OH , USA
6. Person living with epidermolysis bullosa
7. Royal Adelaide Hospital , Adelaide, SA , Australia
8. Dermatology Department, Fundación Universitaria de Ciencias de la Salud, Hospital de San José , Bogotá , Colombia
9. Dermatology Department, Fundación Universitaria de Ciencias de la Salud, Hospital Infantil Universitario de San José , Bogotá , Colombia
10. Division of Paediatric Dermatology and Centre for Rare Congenital Skin Diseases, Children’s Hospital Auf der Bult , Hanover , Germany
11. RCSI University of Medicine and Health Sciences , Dublin , Ireland
12. Mildmay Mission Hospital , London, UK
13. DEBRA International , Vienna , Austria