Women’s sexual activity and experiences following female genital fistula surgery

Author:

El Ayadi Alison M12ORCID,Nalubwama Hadija3,Miller Suellen1,Mitchell Ashley4,Korn Abner P1,Chen Chi Chiung Grace5,Byamugisha Josaphat3,Painter Caitlyn16,Obore Susan7,Barageine Justus K37

Affiliation:

1. Department of Obstetrics, Gynecology and Reproductive Sciences, University of California, San Francisco , San Francisco, CA 94158 , United States

2. Department of Epidemiology and Biostatistics, University of California, San Francisco , San Francisco, CA 94158 , United States

3. Department of Obstetrics and Gynaecology, College of Health Sciences, Makerere University , Kampala , Uganda

4. Institute for Global Health Sciences, University of California , San Francisco, San Francisco, CA 94158 , United States

5. Department of Gynecology and Obstetrics, School of Medicine, Johns Hopkins University , Baltimore, MD 21218 , United States

6. Urogynecology Division, Department of Obstetrics and Gynecology, Kaiser Permanente , Oakland, CA 94611 , United States

7. Urogynecology Division, Mulago National Referral and Teaching Hospital , Kampala , Uganda

Abstract

Abstract Background Surgical repair has a transformative impact on the lives of women affected by female genital fistula; however, various physical, social, and economic challenges may persist postrepair and prevent complete reengagement in relationships and communities. Nuanced investigation of these experiences is needed to inform programming that aligns with women’s reintegration needs. Aim We investigated the sexual activity resumption, experiences, and concerns of women in Uganda during the year following genital fistula repair surgery. Methods Women were recruited from Mulago Hospital between December 2014 and June 2015. We collected data at baseline and 4 times postsurgery about sociodemographic characteristics and physical/psychosocial status; we also assessed sexual interest and satisfaction twice. We performed in-depth interviews with a subset of participants. We analyzed quantitative findings via univariate analyses, and qualitative findings were coded and analyzed thematically. Outcomes We assessed sexual readiness, fears, and challenges following surgical repair of female genital fistula using quantitative and qualitative measures of sexual activity, pain with sex, sexual interest/disinterest, and sexual satisfaction/dissatisfaction. Results Among the 60 participants, 18% were sexually active at baseline, which decreased to 7% postsurgery and increased to 55% at 1 year after repair. Dyspareunia was reported by 27% at baseline and 10% at 1 year; few described leakage during sex or vaginal dryness. Qualitative findings showed wide variance of sexual experiences. Some reported sexual readiness quickly after surgery, and some were not ready after 1 year. For all, fears included fistula recurrence and unwanted pregnancy. Conclusion These findings suggest that postrepair sexual experiences vary widely and intersect meaningfully with marital and social roles following fistula and repair. In addition to physical repair, ongoing psychosocial support is needed for comprehensive reintegration and the restoration of desired sexuality. Highlights

Funder

Eunice Kennedy Shriver National Institute of Child Health and Human Development

US National Institutes of Health

Fistula Foundation

US Agency for International Development via the Fistula Care Plus Project

Publisher

Oxford University Press (OUP)

Subject

Urology,Reproductive Medicine,Endocrinology,Endocrinology, Diabetes and Metabolism,Psychiatry and Mental health

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