The European Anorectal Malformation Network (ARM-Net) patient registry: 10-year review of clinical and surgical characteristics

Author:

Hageman Isabel C12ORCID,Midrio Paola3,van der Steeg Hendrik J J1ORCID,Jenetzky Ekkehart45,Iacobelli Barbara D6,Morandi Anna7,Sloots Cornelius E J8,Schmiedeke Eberhard9,Broens Paul M A10,Fascetti Leon Francesco11,Çavuşoğlu Yusuf H12,Gorter Ramon R131415,Trajanovska Misel216,King Sebastian K21617,Aminoff Dalia18,Schwarzer Nicole19,Haanen Michel20,de Blaauw Ivo1ORCID,van Rooij Iris A L M21,Amerstorfer Eva,Till Holger,Bagolan Piero,Deluggi Stefan,Divarci Emre,Fanjul María,Vázquez Araceli García,Giné Carlos,Gosemann Jan,Lacher Martin,Grano Caterina,Grasshoff-Derr Sabine,Giuliani Stefano,Holland-Cunz Stefan,Krois Wilfried,Leva Ernesto,Policlinico Granda Ospedale Maggiore,Lindert Judith,Lisi Gabriele,Ludwiczek Johanna,Makedonsky Igor,Marcelis Carlo,Verhaak Chris,Miserez Marc,Mohideen Mazeena,Prato Alessio Pini,Poš Lucie,Škába Richard,Reck-Burneo Carlos,Reutter Heiko,Rohleder Stephan,Samuk Inbal,Schukfeh Nagoud,Stenström Pernilla,Vilanova-Sánchez Alejandra,Volk Patrick,Witvliet Marieke,

Affiliation:

1. Department of Pediatric Surgery, Radboudumc Amalia Children’s Hospital , Nijmegen , The Netherlands

2. Surgical Research, Murdoch Children’s Research Institute , Melbourne, Victoria , Australia

3. Pediatric Surgery Unit, Cà Foncello Hospital , Treviso , Italy

4. Department of Child and Adolescent Psychiatry and Psychotherapy, University Medical Center of Johannes Gutenberg-University , Mainz , Germany

5. Department of Medicine, Faculty of Health, Witten/Herdecke University , Witten , Germany

6. Medical and Surgical Department of the Fetus-Newborn-Infant, Ospedale Bambin Gesù , Rome , Italy

7. Department of Pediatric Surgery, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico , Milan , Italy

8. Department of Pediatric Surgery, Erasmus Medical Center–Sophia Children’s Hospital , Rotterdam , The Netherlands

9. Department of Pediatric Surgery and Urology, Centre for Child and Youth Health, Klinikum Bremen-Mitte , Bremen , Germany

10. Department of Surgery, Division of Pediatric Surgery, University Medical Center Groningen , Groningen , The Netherlands

11. Pediatric Surgery Unit, University Hospital , Padua , Italy

12. Department of Pediatric Surgery, Gazi University Faculty of Medicine , Ankara , Turkey

13. Department of Pediatric Surgery, Emma Children’s Hospital Amsterdam UMC, Location University of Amsterdam , Amsterdam , The Netherlands

14. Amsterdam Gastroenterology and Metabolism Research Institute , Amsterdam , The Netherlands

15. Amsterdam Reproduction and Development Research Institute , Amsterdam , The Netherlands

16. Department of Paediatrics, University of Melbourne , Melbourne , Australia

17. Department of Paediatric Surgery, The Royal Children’s Hospital , Melbourne, Victoria , Australia

18. AIMAR—Associazione Italiana Malformazioni AnoRettali , Rome , Italy

19. SOMA—Selfhelp Organization for People with Anorectal Malformations e.V. , Munich , Germany

20. VA-Dutch Patient Organization for Anorectal Malformations , Huizen , The Netherlands

21. Department for Health Evidence, Radboudumc , Nijmegen , The Netherlands

Funder

Academy Ter Meulen grant of the Academy Medical Sciences Fund of the Royal Netherlands Academy of Arts & Sciences

Royal Children’s Hospital Foundation and the Australian Government

Publisher

Oxford University Press (OUP)

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