Patient-reported outcome measures for life participation in peritoneal dialysis: a systematic review

Author:

Manera Karine E12ORCID,Ju Angela12,Baumgart Amanda12,Hannan Elyssa2,Qiao Wenjing2,Howell Martin12ORCID,Nataatmadja Melissa3ORCID,Wilkie Martin4,Loud Fiona5,Schwartz Daniel6,Hurst Helen7,Jassal Sarbjit Vanita8,Figueiredo Ana9,Mehrotra Rajnish10,Shen Jenny11,Morton Rachael L12,Moraes Thyago13,Walker Rachael14,Cheung Catherine15,Farragher Janine F16,Craig Jonathan17,Johnson David W181920,Tong Allison12

Affiliation:

1. Sydney School of Public Health, University of Sydney, Sydney, NSW, Australia

2. Centre for Kidney Research, Children’s Hospital at Westmead, Westmead, NSW, Australia

3. Sunshine Coast Hospital and Health Service, Sunshine Coast University Hospital, Kawana Waters, QLD, Australia

4. Department of Nephrology, Sheffield Teaching Hospital NHS Foundation Trust, Sheffield, UK

5. Kidney Care UK, Alton, UK

6. Division of Nephrology, Department of Medicine, University of British Columbia, Vancouver, BC, Canada

7. Manchester Academic Health Science Centre, Manchester University NHS Foundation Trust, University of Manchester, Manchester, UK

8. Division of Nephrology, Department of Medicine, University Health Network, University of Toronto, Toronto, ON, Canada

9. School of Science and Life, Nursing School Pontifical Catholic University of Rio Grande do Sul, Porto Alegre, Brazil

10. Kidney Research Institute and Harborview Medical Center, Division of Nephrology/Department of Medicine, University of Washington, Seattle, WA, USA

11. Division of Nephrology and Hypertension, Los Angeles Biomedical Research Institute at Harbor-UCLA Medical Center, Torrance, CA, USA

12. NHMRC Clinical Trials Centre, University of Sydney, Sydney, NSW, Australia

13. School of Medicine, Pontifícia Universidade Católica do Paraná, Curitiba, Paraná, Brazil

14. School of Nursing, Eastern Institute of Technology, Hawke's Bay, New Zealand

15. Fraser Health Authority, British Columbia, Canada

16. Department of Community Health Sciences, University of Calgary, Calgary, AB, Canada

17. College of Medicine and Public Health, Flinders University, Adelaide, SA, Australia

18. Department of Nephrology, Princess Alexandra Hospital, Brisbane, QLD, Australia

19. Australasian Kidney Trials Network, Centre for Health Services Research, University of Queensland, Brisbane, QLD, Australia

20. The Centre for Kidney Disease Research, University of Queensland, Brisbane, QLD, Australia

Abstract

Abstract Background Patients receiving peritoneal dialysis (PD) endure an ongoing regimen of daily fluid exchanges and are at risk of potentially life-threatening complications and debilitating symptoms that can limit their ability to participate in life activities. The aim of the study was to identify the characteristics, content and psychometric properties of measures for life participation used in research in PD. Methods We searched MEDLINE, Embase, PsychInfo, the Cumulative Index to Nursing and Allied Health Literature (CINAHL) and the Cochrane Central Register of Controlled Trials from inception to May 2020 for all studies that reported life participation in patients on PD. The characteristics, dimensions of life participation and psychometric properties of these measures were extracted and analyzed. Results Of the 301 studies included, 17 (6%) were randomized studies and 284 (94%) were nonrandomized studies. Forty-two different measures were used to assess life participation. Of these, 23 (55%) were used in only one study. Fifteen (36%) measures were specifically designed to assess life participation, while 27 (64%) measures assessed broader constructs, such as quality of life, but included questions on life participation. The 36-Item Short Form Health Survey and Kidney Disease Quality of Life Short Form were the most frequently used measures [122 (41%) and 86 (29%) studies, respectively]. Eight (19%) measures had validation data to support their use in patients on PD. Conclusions The many measures currently used to assess life participation in patients receiving PD vary in their characteristics, content and validation. Further work to pilot and validate potential measures is required to establish a core patient-reported outcome measure to assess life participation in patients receiving PD.

Funder

National Health and Medical Research Council

NHMRC Practitioner Fellowship

National Institute of Diabetes and Digestive Kidney Diseases

National Institutes of Health

Publisher

Oxford University Press (OUP)

Subject

Transplantation,Nephrology

Cited by 11 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

1. Occupational Priorities of People on Hemodialysis Who Participated in Energy Management Education;Canadian Journal of Occupational Therapy;2024-08-07

2. Measuring Social Functioning in Chronic Kidney Disease;Seminars in Nephrology;2024-08

3. The impact of cat-related peritonitis on peritoneal dialysis outcomes: Results from the RDPLF;Peritoneal Dialysis International: Journal of the International Society for Peritoneal Dialysis;2023-11-28

4. Self-Management Interventions for Facilitating Life Participation for Persons with Kidney Failure;Clinical Journal of the American Society of Nephrology;2023-11-09

5. Peritoneal Dialysis Program Organization and Management;Nolph and Gokal's Textbook of Peritoneal Dialysis;2023

同舟云学术

1.学者识别学者识别

2.学术分析学术分析

3.人才评估人才评估

"同舟云学术"是以全球学者为主线,采集、加工和组织学术论文而形成的新型学术文献查询和分析系统,可以对全球学者进行文献检索和人才价值评估。用户可以通过关注某些学科领域的顶尖人物而持续追踪该领域的学科进展和研究前沿。经过近期的数据扩容,当前同舟云学术共收录了国内外主流学术期刊6万余种,收集的期刊论文及会议论文总量共计约1.5亿篇,并以每天添加12000余篇中外论文的速度递增。我们也可以为用户提供个性化、定制化的学者数据。欢迎来电咨询!咨询电话:010-8811{复制后删除}0370

www.globalauthorid.com

TOP

Copyright © 2019-2024 北京同舟云网络信息技术有限公司
京公网安备11010802033243号  京ICP备18003416号-3