Funding kidney research as a public health priority: challenges and opportunities

Author:

Zoccali Carmine1,Vanholder Raymond23,Wagner Carsten A4,Anders Hans-Joachim5,Blankestijn Peter J6,Bruchfeld Annette7,Capasso Giovambattista8,Cozzolino Mario9,Dekker Friedo W10,Fliser Danilo11,Fouque Denis12,Gansevoort Ron T13,Goumenos Dimitrios14,Jager Kitty J15,Massy Ziad A16,Oostrom Tom A J17,Rychlık Ivan18,Soler Maria Jose19,Stevens Kate20,Spasovski Goce21,Wanner Christoph22

Affiliation:

1. CNR-IFC, c/o Ospedali Riuniti, Reggio Calabria, Italy

2. Department of Internal Medicine, Ghent University Hospital, Ghent, Belgium

3. European Kidney Health Alliance (EKHA), Brussels, Belgium

4. Institute of Physiology, Switzerland and National Center of Competence in Research NCCR Kidney, University of Zurich, Zurich, Switzerland

5. Division of Nephrology, Medizinische Klinik und Poliklinik IV, Klinikum der Universität, Munich, Germany

6. Nephrology Section Department of Nephrology, University Medical Center, Utrecht, The Netherlands

7. Department of Renal Medicine, Karolinska University Hospital, Stockholm, Sweden

8. Department of Translational Medical Sciences, University Campania ‘Luigi Vanvitelli’, Naples, Italy

9. Renal Division, ASST Santi Paolo E Carlo, Department of Health Sciences, University of Milan, Milan, Italy

10. Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands

11. Internal Medicine IV, Renal and Hypertensive Diseases, Saarland University Medical Centre, Homburg/Saar, Germany

12. Department of Nephrology, Dialysis, Nutrition, Centre Hospitalier Lyon Sud, Pierre Bénite Cedex, France

13. Department of Nephrology, University Medical Centre Groningen, University Hospital Groningen, Groningen, The Netherlands

14. Department of Nephrology and Renal Transplantation, Patras University Hospital, Patras, Greece

15. Department of Medical Informatics, Academic Medical Center, Amsterdam Public Health Research Institute, University of Amsterdam, Amsterdam, The Netherlands

16. Division of Nephrology, Ambroise Paré University Hospital, APHP, Boulogne Billancourt/Paris and Centre for Research in Epidemiology and Population Health (CESP), INSERM UMRS 1018 Team 5, University Paris-Saclay, and University Versailles Saint Quentin, Villejuif, France

17. Dutch Kidney Foundation, Bussum, The Netherlands

18. 1st Department of Internal Medicine, Third Faculty of Medicine, Charles University, Prague, Czechia

19. Nephrology Department, Hospital Universitari Vall d’Hebron, Nephrology Research Group, Vall d’Hebron Research Institute (VHIR), Barcelona, Spain

20. Glasgow Renal and Transplant Unit, Queen Elizabeth University Hospital, Glasgow, UK

21. Department of Nephrology, Medical Faculty, University of Skopje, Skopje, Northern Republic of Macedonia

22. Division of Nephrology, University of Würzburg, Würzburg, Germany

Abstract

Abstract Medical societies have a social responsibility to disseminate knowledge and inform health authorities on threats to public health posed by various diseases. Advocacy for health protection programmes and for medical research funding is now embedded into the missions of most scientific societies. To promote kidney research funding in Europe, the European Renal Association – European Dialysis and Transplant Association (ERA-EDTA), rather than acting as an individual society advocating for the fight against kidney disease, has actively helped to create an alliance of national associations centred on kidney diseases, the European Kidney Health Alliance (EKHA), and joined the Biomedical Alliance (BMA). The ERA-EDTA is fully committed to supporting its working groups (WGs) and consortia of its members to allow them to produce valuable kidney research. The framing and formalization of projects, and the regulatory issues related to submission to the European Commission, are complex. To help WGs to gain expert advice from agencies with specific know-how, the ERA-EDTA has adopted a competitive approach. The best research projects proposed by WGs and consortia of other European investigators will receive seed funding to cover the costs of consultancy by expert agencies. Via its broader platforms, the EKHA and the BMA, the ERA-EDTA will strive towards broader recognition of kidney disease and related clusters of non-communicable diseases, by European and national agencies, as major threats to the qualities of life of their populations and their economies.

Publisher

Oxford University Press (OUP)

Subject

Transplantation,Nephrology

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