Healthcare experiences among patients with hidradenitis suppurativa: a qualitative study-Reference-Cited by-同舟云学术

Healthcare experiences among patients with hidradenitis suppurativa: a qualitative study

Published:2023-07-03 Issue:5 Volume:189 Page:624-626
ISSN:0007-0963
Container-title:British Journal of Dermatology
language:en
Short-container-title:

Author:

Sow Yacine¹^ORCID,Salame Nicole²^ORCID,Siira Meron R²^ORCID,Flowers Nyla²,Garg Amit³^ORCID,Patzer Rachel E²^ORCID,Kavalieratos Dio²^ORCID,Curseen Kimberly A⁴,Chen Suephy C⁵^ORCID,Orenstein Lauren A V²^ORCID

Affiliation:

1. Morehouse School of Medicine , Atlanta, GA

2. Department of Dermatology

3. Department of Dermatology, Donald and Barbara Zucker School of Medicine at Hofstra/Northwell , New Hyde Park, NY

4. Department of Medicine, Emory University School of Medicine , Atlanta, GA

5. Department of Dermatology, Duke University School of Medicine , Durham, NC , USA

Abstract

In this qualitative study, 21 adults living with hidradenitis suppurativa (HS) were interviewed about their healthcare experiences. Participants detailed how delay in diagnosis, lack of provider knowledge, inadequate pain management, poor access to care and stigmatization negatively affected their interactions with the healthcare system. Improving disease knowledge among providers, proactively addressing HS-related pain and coordinating access to multidisciplinary care may improve healthcare experiences among individuals living with HS.

Funder

National Institutes of Health

Publisher

Oxford University Press (OUP)

Subject

Dermatology

Link

https://academic.oup.com/bjd/advance-article-pdf/doi/10.1093/bjd/ljad215/51107813/ljad215.pdf

Reference8 articles.

1. Thematic synthesis of the experiences of people with hidradenitis suppurativa: a systematic review;Howells;Br J Dermatol,2021

2. Pain experiences among those living with hidradenitis suppurativa: a qualitative study;Orenstein;Br J Dermatol,2023

3. Sex- and age-adjusted population analysis of prevalence estimates for hidradenitis suppurativa in the United States;Garg;JAMA Dermatol,2017

4. Reframing chronic pain as a disease, not a symptom: rationale and implications for pain management;Clauw;Postgrad Med,2019

5. Evaluating patients’ unmet needs in hidradenitis suppurativa: results from the Global Survey Of Impact and Healthcare Needs (VOICE) Project;Garg;J Am Acad Dermatol,2020