Longitudinal remote monitoring of hidradenitis suppurativa: a pilot study

Author:

Fonjungo Fonette E123ORCID,Barnes Leandra A1ORCID,Cai Zhuo Ran1ORCID,Naik Haley B4ORCID,Eid Edward S1ORCID,Aleshin Maria A1ORCID,Nava Vanessa1ORCID,Johnson Tiffani1ORCID,Chren Mary-Margaret3ORCID,Linos Eleni1ORCID

Affiliation:

1. Department of Dermatology, Stanford Medicine , Palo Alto, CA

2. Meharry Medical College , Nashville, TN

3. Vanderbilt University School of Medicine , Nashville, TN

4. Department of Dermatology, University of California San Francisco , San Francisco, CA , USA

Abstract

We sought to investigate the feasibility of longitudinal monitoring of disease activity from home in people with hidradenitis suppurativa (HS). Over 6 months, our novel digital tool collected 421 photos of HS-affected skin from 27 participants and captured trends in pain and quality of life scores. We found that participants with mild disease were more likely to share their progress than those with more severe disease, which is favourable as it may suggest a role for remote monitoring in tracking disease progression. This pilot provides proof of concept that will support future studies.

Funder

National Institutes of Health

Vanderbilt Medical Scholars Program

Publisher

Oxford University Press (OUP)

Subject

Dermatology

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