U.S. public perceptions of the sensitivity of brain data

Author:

Huang Shenyang12,Paul Umika23,Gupta Shikhar2,Desai Karan24,Guo Melinda2,Jung Jennifer3,Capestany Beatrice2,Krenzer William D2,Stonecipher Dylan25,Farahany Nita25

Affiliation:

1. Center for Cognitive Neuroscience , Duke University, Durham, North Carolina , USA

2. Duke Initiative for Science & Society , Durham, North Carolina , USA

3. University of Massachusetts Chan Medical School , Worcester, Massachusetts , USA

4. University of Michigan Medical School , Ann Arbor, Michigan , USA

5. Duke University , Durham, North Carolina , USA

Abstract

Abstract As we approach an era of potentially widespread consumer neurotechnology, scholars and organizations worldwide have started to raise concerns about the data privacy issues these devices will present. Notably absent in these discussions is empirical evidence about how the public perceives that same information. This article presents the results of a nationwide survey on public perceptions of brain data, to inform discussions of law and policy regarding brain data governance. The survey reveals that the public may perceive certain brain data as less sensitive than other ‘private’ information, like social security numbers, but more sensitive than some ‘public’ information, like media preferences. The findings also reveal that not all inferences about mental experiences may be perceived as equally sensitive, and perhaps not all data should be treated alike in ethical and policy discussions. An enhanced understanding of public perceptions of brain data could advance the development of ethical and legal norms concerning consumer neurotechnology.

Publisher

Oxford University Press (OUP)

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1. Erratum to: U.S. public perceptions of the sensitivity of brain data;Journal of Law and the Biosciences;2024-01-01

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