The regulation of health data sharing in Africa: a comparative study

Author:

Nienaber McKay Annelize G123ORCID,Brand Dirk4,Botes Marietjie56,Cengiz Nezerith56,Swart Marno7

Affiliation:

1. Division of Law , School of Business, Law & Social Sciences, , Dundee, Scotland, United Kingdom of Britain

2. Abertay University , School of Business, Law & Social Sciences, , Dundee, Scotland, United Kingdom of Britain

3. Department of Public Law , University of Pretoria, Pretoria , South Africa

4. School of Public Leadership, Stellenbosch University , Stellenbosch , South Africa

5. Division of Medical Ethics and Law , Faculty of Medicine and Health Sciences, , Stellenbosch , South Africa

6. Stellenbosch University , Faculty of Medicine and Health Sciences, , Stellenbosch , South Africa

7. Faculty of Law , University of Cambridge, Cambridge, United Kingdom of Britain

Abstract

Abstract The sharing of health data is an essential component in the provision of healthcare, in medical research, and disease surveillance. Health data sharing is subject to regulatory frameworks that vary across jurisdictions. In Africa, numerous factors complicate the regulation of health data sharing, including technological, motivational, economic, and political barriers, as well as ethical and legal challenges. This comparative study examines the regulation of health data sharing in Africa by comparing and contrasting the legal and policy frameworks of five African countries. The study identifies gaps and inconsistencies in the current regulatory regimes and provides recommendations for improving the regulation of health data sharing in Africa.

Funder

US National Institute of Mental Health

National Institutes of Health

Publisher

Oxford University Press (OUP)

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