Children and bioethics: clarifying consent and assent in medical and research settings

Author:

Spriggs Merle12

Affiliation:

1. University of Melbourne Children’s Bioethics Centre, Melbourne School of Population and Global Health, , Parkville, VIC 3052, Australia

2. Biomedical Ethics, Murdoch Childrens Research Institute , Parkville, VIC 3052, Australia

Abstract

AbstractIntroductionThe concept of consent in the pediatric setting is complex and confusing. Clinicians and researchers want to know whose consent they should obtain, when a child can provide independent consent and how that is determined. The aim of this article is to establish what produces the justification to proceed with medical or research interventions involving children and the role of consent in that. I clarify concepts such as consent, assent, capacity and competence.Source of dataLiterature review.Areas of agreementEngaging with children and involving them in decisions about matters that affect them is a good thing.Areas of controversyThe role of competence or capacity and the question of when a child can provide sole consent.Growing pointsFlawed assumptions around competence/capacity.Areas for developing researchAn account of children’s well-being that accommodates children’s interests during the transition to adulthood.

Publisher

Oxford University Press (OUP)

Subject

General Medicine

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