Co-created training program to promote active ageing in people with Down syndrome

Abstract

Abstract Background Population ageing is a current challenge for the European society. Specifically, People with Down Syndrome (PDS) are living longer than before, reaching some of them around 60 years old. However, it is known that they show premature ageing that in some cases may be misled with Alzheimer first signs. Hence, it is crucial to promote an Active Ageing (AA) and healthy living in this specific population by keeping their cognitive, physical and emotional functions, and also promoting social activities such as community participation. In such way, their Quality of Life (QoL) will be increased. Objectives The main objective of this study was to co-design a Training Program (TP) to promote AA in PDS, professionals, relatives and/or caregivers, on the framework of the DS-AGEING project (2018-1-ES01-KA204-050733). Results Co-creation sessions with PDS, professionals and relatives/informal caregivers from Spain, Portugal, Slovenia, Rumania and Greece were carried out to determine contents, methodology and materials of the TP. This methodology allows meeting their real needs but also it promotes inclusion. The resulting TP is formed by the next topics (and its subtopics): active ageing, cognitive functioning (attention, memory, executive functions, praxis, gnosis, etc.), facing transition events, physical health (healthy habits & postural control). Training will be performed by 3 types of activities: face-to-face, practical and e-training. Co-validation sessions with end-users were conducted to validate the TP. Also, an e-training platform to support the TP implementation will be designed. Conclusions An easy, practical and flexible TP was co-created to be adjusted to each PDS and to be used by any person with/without experience in training. In such way, this study has a holistic perspective as cover all end-users needs: PDS will be able to train in the affected areas and professionals and relatives will have tools to assist them in the training. Key messages This co-created TP will be a tool for professionals and relatives/caregivers to foster AA and increase QoL of PDS. This study will promote an early detection of deterioration symptoms and the preservation of abilities in PDS.