Acceptability of a brief fatigue intervention for inflammatory arthritis: a qualitative process evaluation

Author:

Berry Alice12ORCID,Bridgewater Susan12,Abbott Bryan2,Adams Jo3ORCID,Dures Emma12

Affiliation:

1. School of Health and Social Wellbeing, Faculty of Health and Applied Sciences, University of the West of England

2. Academic Rheumatology, University Hospitals Bristol and Weston NHS Foundation Trust , Bristol

3. Health Sciences, University of Southampton , Southampton, UK

Abstract

Abstract Objectives We developed a brief cognitive behavioural, one-to-one intervention to reduce fatigue impact for patients with inflammatory arthritis. This qualitative process evaluation explored intervention acceptability and potential refinements from the perspective of patients who attended sessions and rheumatology health professionals (RHPs) who delivered the intervention. Methods Interviews were conducted with patients and RHPs from five National Health Service (NHS) sites. Data were analysed using inductive thematic analysis. Results Twenty-two patients and 11 RHPs participated. Patient themes Collaborative, non-judgemental consultations: patients valued having space to reflect, where their fatigue was validated. Relevant content, but not ground-breaking: patients appreciated the opportunity to tailor content to individual priorities. Daily diaries were useful to visualize fatigue. Self-awareness: patients reported increased acceptance, sense of control, and confidence to manage fatigue. Degrees of openness to change: sessions prompted patients to engage in behaviour change. For some, complicated lives made it difficult to plan for change. RHP themes Engagement with intervention: RHPs liked training face to face, and sessions were more enjoyable with experience of delivery. Research vs clinical practice: RHPs expressed concern about fitting sessions into NHS clinic appointments. It was difficult to offer follow-up sessions within 2 weeks. Collaborating with patients: RHPs reported that patients engaged with the tools and strategies. Some RHPs followed the manual in a linear way, whereas others used it flexibly. Conclusion There is potential for this brief fatigue intervention to benefit patients. Future research will focus on flexibility to fit with local services and creating educational resources to use in a range of contexts.

Funder

National Institute for Health Research

Publisher

Oxford University Press (OUP)

Subject

Rheumatology

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