Trading-off privacy and utility: the Washington State experience assessing the performance of a public health digital exposure notification system for coronavirus disease 2019

Author:

Segal Courtney D1ORCID,Lober William B23ORCID,Revere Debra1ORCID,Lorigan Daniel3,Karras Bryant T4ORCID,Baseman Janet G5ORCID

Affiliation:

1. Department of Health Systems and Population Health, University of Washington , Seattle, Washington DC, USA

2. Department of Biobehavioral Nursing and Health Informatics, University of Washington , Seattle, Washington DC, USA

3. Clinical Informatics Research Group, University of Washington , Seattle, Washington DC, USA

4. Washington State Department of Health , Olympia, Washington DC, USA

5. Department of Epidemiology, University of Washington , Seattle, Washington DC, USA

Abstract

AbstractObjectiveDigital exposure notifications (DEN) systems were an emergency response to the coronavirus disease 2019 (COVID-19) pandemic, harnessing smartphone-based technology to enhance conventional pandemic response strategies such as contact tracing. We identify and describe performance measurement constructs relevant to the implementation of DEN tools: (1) reach (number of users enrolled in the intervention); (2) engagement (utilization of the intervention); and (3) effectiveness in preventing transmissions of COVID-19 (impact of the intervention). We also describe WA State’s experience utilizing these constructs to design data-driven evaluation approaches.MethodsWe conducted an environmental scan of DEN documentation and relevant publications. Participation in multidisciplinary collaborative environments facilitated shared learning. Compilation of available data sources and their relevance to implementation and operation workflows were synthesized to develop implementation evaluation constructs.ResultsWe identified 8 useful performance indicators within reach, engagement, and effectiveness constructs.DiscussionWe use implementation science to frame the evaluation of DEN tools by linking the theoretical constructs with the metrics available in the underlying disparate, deidentified, and aggregate data infrastructure. Our challenges in developing meaningful metrics include limited data science competencies in public health, validation of analytic methodologies in the complex and evolving pandemic environment, and the lack of integration with the public health infrastructure.ConclusionContinued collaboration and multidisciplinary consensus activities can improve the utility of DEN tools for future public health emergencies.

Funder

State of Washington Department of Health

University of Washington

Publisher

Oxford University Press (OUP)

Subject

Health Informatics

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