Affiliation:
1. Faculty of Health, Graduate School of Health, University of Technology Sydney , Ultimo, New South Wales , Australia
2. Faculty of Medicine and Health, Sydney School of Health Sciences, The University of Sydney , Glebe, New South Wales , Australia
3. Department of Nordic Studies and Linguistics, University of Copenhagen , Copenhagen, Hovedstaden , Denmark
Abstract
Abstract
Background and Objectives
Communication partner training (CPT) is essential in dementia care. Despite families being the largest group of community carers, previous reviews primarily focused on formal carers. This study aimed to understand the characteristics and effectiveness of CPT for families of people with dementia.
Research Design and Methods
The systematic review included intervention/protocol studies on dementia CPT for families, excluding formal carers and programs not focused on communication. CINAHL, PsycINFO, SpeechBITE, Medline, SCOPUS, and Embase were searched between November 30 and December 6, 2021. After deduplication, 3,172 records were screened. Quality assessment used JBI Critical Appraisal tools and the Mixed Methods Appraisal Tool. Data synthesis utilized three reporting tools, the International Classification of Functioning, Disability, and Health, and content analysis.
Results
Of 30 studies (27 programs), there were 10 quasi-experimental, 5 RCTs, 4 mixed methods, 4 case studies, 4 qualitative, and 2 protocols. Studies were published between 1998 and 2021 and included 671 family members. Characteristics varied with 7/27 programs including consumers during creation and one program including telehealth. One study included all reporting tool criteria. Programs typically used 4 intervention functions, with 12/27 programs addressing 3 behavior change areas. 33/74 outcome measures targeted the “Environment” of the person with dementia. Studies showed positive improvements in communication skills and knowledge, with mixed results on behavior/psychosocial outcomes. Qualitative results identified improvements in conversation and attitudes.
Discussion and Implications
CPT for families improves communication outcomes, however, quality of studies varied significantly. Future research should address gaps in telehealth, consumer involvement, and intervention descriptions.
Funder
Australian Government Research Training Program Scholarship
Publisher
Oxford University Press (OUP)
Subject
Geriatrics and Gerontology,Gerontology,General Medicine
Cited by
5 articles.
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