A Systematic Review on Navigation Programs for Persons Living With Dementia and Their Caregivers

Author:

Kokorelias Kristina M1ORCID,Shiers-Hanley Jessica E2,Li Zoe13,Hitzig Sander L14ORCID

Affiliation:

1. St. John’s Rehab Research Program, Sunnybrook Research Institute, Sunnybrook Health Sciences Centre , Toronto, Ontario , Canada

2. Hazel McCallion Academic Learning Centre, University of Toronto , Toronto, Ontario , Canada

3. Department of Biomedical and Molecular Sciences, Queen’s University , Kingston, Ontario , Canada

4. Department of Occupational Science & Occupational Therapy and Rehabilitation Sciences Institute, Temerty Faculty of Medicine, University of Toronto , Toronto, Ontario , Canada

Abstract

Abstract Background and Objectives System navigation programs are becoming more available to meet the needs of patients with complex care needs. The aim of this review was to systematically assess the outcomes of navigation programs for persons with dementia and their family caregivers. Research Design and Methods A systematic review methodology was employed. Ten databases were searched for all relevant articles published until October 30, 2021. English-language full-text articles were included if they focused on implemented navigation program(s) that primarily supported persons with dementia who were aged 50 or older. Methodological quality was assessed by 2 independent raters using the Physiotherapy Evidence Database Scale, the STrengthening the Reporting of OBservational studies in Epidemiology checklist, and the Mixed Methods Appraisal Tool. Results Fourteen articles were included in the review. There was Level 1 evidence for the benefits of system navigation programs on delaying institutionalization, wherein benefits appeared to be specific to interventions that had an in-person component. There was Level 1 (n = 4) and Level 3 (n = 1) evidence on service use from time of diagnosis to continued management of dementia. Finally, Level 1 to Level 5 evidence indicated a number of benefits on caregiver outcomes. Discussion and Implications There is strong evidence on the benefits of system navigation for people with dementia on delaying institutionalization and caregiver outcomes, but outcomes across other domains (i.e., functional independence) are less clear, which may be due to the varied approaches within system navigation models of care.

Funder

Alzheimer’s Society of Canada Quality of Life Stream Post-Doctoral

Publisher

Oxford University Press (OUP)

Subject

Geriatrics and Gerontology,Gerontology,General Medicine

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