Dementia Caregiving Research: Expanding and Reframing the Lens of Diversity, Inclusivity, and Intersectionality

Author:

Dilworth-Anderson Peggye1,Moon Heehyul2,Aranda María P34

Affiliation:

1. Health Policy and Management, Gillings School of Global Public Health, University of North Carolina—Chapel Hill

2. Kent School of Social Work, University of Louisville, Kentucky

3. USC Edward R. Roybal Institute on Aging, University of Southern California, Los Angeles

4. USC Alzheimer’s Disease Center, University of Southern California, Los Angeles

Abstract

AbstractThis forum expands and reframes the lens of dementia caregiving research among diverse racial and ethnic groups to better understand the unique needs, stressors, and strengths of multicultural and racial-ethnic family caregivers in the United States. By providing more diverse and inclusive knowledge on caregiving to older adults in the United States, we can create a new path forward with regards to caregiving research. Throughout the article, major questions and answers are supported by critiquing some of the caregiving literature. Discussions are provided to help create inclusive ways of conceptualizing caregiving research and using methodological approaches to reflect the diversity of caregivers and care recipients in the United States. Expanding and reframing the conceptual and methodological lens of diversity, inclusivity and intersectionality can provide evidence to support effective policy, practice, and care in addressing the needs of diverse groups of caregivers and older adults living with dementia.

Funder

National Institutes of Health

National Center for Advancing Translational Sciences

Publisher

Oxford University Press (OUP)

Subject

Geriatrics and Gerontology,Gerontology,General Medicine

Reference77 articles.

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2. Caregiver burden: A clinical review;Adelman;JAMA,2014

3. Multi-cultural caregiving and caregiver interventions: A look back and a call for future action;Apesoa-Varano;Generations,2015

4. Racial and ethnic factors in dementia care-giving research in the US;Aranda;Aging & Mental Health,2001

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