A 25-Years Retrospective of Health Information Technologies Infrastructuring: the Example of Catalonia Region (Preprint)

Abstract

Over the past decades, healthcare systems have significantly evolved due to aging populations, chronic diseases, and higher quality care expectations. Concurrently with the added healthcare needs, information and communication technologies (ICT) advancements have transformed healthcare delivery. Technologies like telemedicine, electronic health records, and mobile health apps promise enhanced accessibility, efficiency, and patient outcomes, leading to more personalized, data-driven care. However, organizational, political, cultural barriers, and the fragmented approach to health information management challenge integrating these technologies into healthcare. This fragmentation collides with the need for integrated care pathways that focus on holistic health and wellness. Catalonia (north-east Spain), an 8-million-people region with universal healthcare coverage and a single public health insurer, has experienced outstanding digitalization and integration of health information over the past twenty-five years, when the first transition from paper to digital support occurred. This viewpoint describes the implementation of subsequent registries and information platforms at the system level and discusses the hits and misses encountered in this journey. We present the architectures and use trends of the health information platforms over time. This information provides insightful information that can be used by other systems worldwide in the never-ending transformation of healthcare structure and services.