Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study

Author:

Spencer KarenORCID,Sanders CarolineORCID,Whitley Edgar AORCID,Lund DavidORCID,Kaye JaneORCID,Dixon William GregoryORCID

Publisher

JMIR Publications Inc.

Subject

Health Informatics

Reference34 articles.

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2. The Farr Institute of Health Informatics Research2016-03-04http://www.farrinstitute.org/

3. The social licence for research: whycare.dataran into trouble

4. CaldicottFInformation: To Share or Not to Share? The Information Governance Review2013032016-03-06https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/192572/2900774_InfoGovernance_accv2.pdf

5. Better Information Means Better Care20142016-03-04London, UKNational Health Servicehttps://www.england.nhs.uk/wp-content/uploads/2014/01/cd-leaflet-01-14.pdf

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