Otizmli Çocuklarda Topluluk Temelli Serbest Zaman Katılımında Algilanan Damgalama: Türk Ebeveyn Perspektifi

Abstract

In this research, the perceived stigma during community-based leisure activity (CBLA) participation of children with autism spectrum disorder (ASD) was investigated from the perspective of parents. The study group for the research comprised 10 parents of children aged 7-18 years. In the research designed with qualitative research methods, the conceptual framework comprised Goffman’s (1963) ‘stigma theory’. Data were collected with the face-to-face interview method using a semi-structured interview form. Analysis of data used the thematic analysis method. Within this scope, themes comprised an important necessity, tones of stigma, nature of being a parent, two different sides and learned loneliness. According to the research findings, parents of children with ASD appeared to attach great importance to participation in CBLA. Due to CBLA participation being an effective socialization tool for children with ASD, parents saw it as a serious necessity. During participation in CBLA, children with ASD were exposed to many types of stigma and parents generally provided strong reactions to this situation. Perceived stigma negatively affected the CBLA participation of parents and individuals with ASD. In conclusion, CBLA participation is an important need for children with ASD, and by reducing the negative attitudes and behaviors affecting participation more children will experience participation in this type of leisure activity.