1. Department of Genetics, University of Leicester, United Kingdom.
2. Department of Genetics, University Hospitals of Leicester NHS Trust, United Kingdom.
3. Genetic Alliance UK, London, United Kingdom.
4. Medicine and Health Sciences, University of Nottingham, United Kingdom.
5. Collaboration for Leadership in Applied Health Research and Care (CLAHRC) for Leicestershire, Northamptonshire and Rutland (LNR), United Kingdom; Clinical Genetics Department, University Hospitals of Leicester NHS Trust, United Kingdom.