Lessons for Employing Participatory Design When Developing Care for Young People with Cancer: A Qualitative Multiple-Case Study

Author:

Vandekerckhove Pieter1,de Mul Marleen1,de Groot Lisanne2,Elzevier Henk W.3,Fabels Barbara4,Haj Mohammad Soemeya3,Husson Olga5,Noij Julian2,Sleeman Sophia H.E.2,Verbeek Danielle6,Von Rosenstiel Ines7,de Bont Antoinette A.1,Manten-Horst Eveliene8

Affiliation:

1. Erasmus School of Health Policy & Management, Erasmus University Rotterdam, Rotterdam, The Netherlands.

2. Dutch AYA Care Network, Utrecht, The Netherlands.

3. Department of Urology and Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands.

4. SEIN, Zwolle, The Netherlands.

5. Department of Medical Oncology and Psychosocial Research and Epidemiology, Netherlands Cancer Institute, Amsterdam, The Netherlands.

6. Independent Researcher-Oncologist, Groningen, The Netherlands.

7. Oncological Center, Hospital Rijnstate Arnhem, Arnhem, The Netherlands.

8. Radboud University Medical Center (Radboudumc), Nijmegen, The Netherlands.

Publisher

Mary Ann Liebert Inc

Subject

Oncology,Pediatrics, Perinatology, and Child Health

Reference42 articles.

1. 1. Jansen R, Kaal SEJ, Schreuder-Cats M, Manten-Horst E. The dutch AYA outpatient clinic: support and counselling during and after cancer treatment. In: Olsen P, Smith S (Eds). Nursing Adolescents and Young Adults with Cancer. Cham, Switzerland: Springer International Publishing; 2018; pp. 157–72.

2. Psychosocial service use and unmet need among recently diagnosed adolescent and young adult cancer patients

3. Cancer Survivorship

4. Patterns of unmet needs in adolescent and young adult (AYA) cancer survivors: in their own words

5. System Performance Indicators for Adolescent and Young Adult Cancer Care and Control: A Scoping Review

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