Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research-Reference-Cited by-同舟云学术

Views of Adolescents and Young Adults with Cancer and Their Oncologists Toward Patients' Participation in Genomic Research

Published:2023-10-01 Issue:5 Volume:12 Page:773-781
ISSN:2156-5333
Container-title:Journal of Adolescent and Young Adult Oncology
language:en
Short-container-title:Journal of Adolescent and Young Adult Oncology

Author:

Gutierrez Amanda M.¹^ORCID,Robinson Jill O.¹,Raesz-Martinez Robin²³,Canfield Isabel¹,Majumder Mary A.¹,Scollon Sarah²³,Desrosiers Lauren R.²³,Hsu Rebecca L.¹^ORCID,Allen-Rhoades Wendy⁴,Parsons D. Williams²³,Plon Sharon E.²³,McGuire Amy L.¹,Malek Janet¹

Affiliation:

1. Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.

2. Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas, USA.

3. Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA.

4. Department of Pediatric and Adolescent Medicine, Mayo Clinic, Rochester, Minnesota, USA.

Publisher

Mary Ann Liebert Inc

Subject

Oncology,Pediatrics, Perinatology and Child Health

Link

https://www.liebertpub.com/doi/pdf/10.1089/jayao.2022.0066

Reference38 articles.

1. Practical Guidance on Informed Consent for Pediatric Participants in a Biorepository

2. Pediatric clinical exome/genome sequencing and the engagement process: encouraging active conversation with the older child and adolescent: points to consider—a statement of the American College of Medical Genetics and Genomics (ACMG)

3. Points to Consider: Ethical, Legal, and Psychosocial Implications of Genetic Testing in Children and Adolescents

4. Stakeholders’ Opinions on the Implementation of Pediatric Whole Exome Sequencing: Implications for Informed Consent

5. Adolescents’ preferences regarding disclosure of incidental findings in genomic sequencing that are not medically actionable in childhood

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