Achieving Procedural Parity in Managing Access to Genomic and Related Health Data: A Global Survey of Data Access Committee Members-Reference-Cited by-同舟云学术

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Achieving Procedural Parity in Managing Access to Genomic and Related Health Data: A Global Survey of Data Access Committee Members

Published:2023-05-16 Issue: Volume: Page:
ISSN:1947-5535
Container-title:Biopreservation and Biobanking
language:en
Short-container-title:Biopreservation and Biobanking

Author:

Lawson Jonathan¹^ORCID,Rahimzadeh Vasiliki¹²^ORCID,Baek Jinyoung¹,Dove Edward S.³

Affiliation:

1. Data Sciences Platform, Broad Institute of MIT and Harvard, Cambridge, Massachusetts, USA.

2. Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.

3. School of Law, University of Edinburgh, Edinburgh, United Kingdom.

Publisher

Mary Ann Liebert Inc

Subject

Cell Biology,General Biochemistry, Genetics and Molecular Biology,General Medicine,Medicine (miscellaneous)

Link

https://www.liebertpub.com/doi/pdf/10.1089/bio.2022.0205

Reference17 articles.

1. What can data trusts for health research learn from participatory governance in biobanks?

2. “You want the right amount of oversight”: interviews with data access committee members and experts on genomic data access

3. Data Access Committees

4. The European Genome-phenome Archive in 2021

5. Registered access: authorizing data access

Cited by 5 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. A qualitative interview study to determine barriers and facilitators of implementing automated decision support tools for genomic data access;BMC Medical Ethics;2024-05-05

2. Investigating the Roles and Responsibilities of Institutional Signing Officials After Data Sharing Policy Reform for Federally Funded Research in the United States: National Survey;JMIR Formative Research;2024-03-20

3. A qualitative interview study to determine barriers and facilitators of implementing automated decision support tools for genomic data access;2024-01-17

4. The Ethical Data Practices Framework and Its Implications for Data Privacy Relations between the United States and the European Union;The American Journal of Bioethics;2023-10-25

5. Survey of U.S. institutional signing officials (SOs) on data sharing policies and practices (Preprint);2023-06-10

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