“Still Rather Hazy at Present”: Citizens' and Physicians' Views on Returning Results from Biobank Research Using Broad Consent-Reference-Cited by-同舟云学术

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“Still Rather Hazy at Present”: Citizens' and Physicians' Views on Returning Results from Biobank Research Using Broad Consent

Published:2017-03 Issue:3 Volume:21 Page:159-165
ISSN:1945-0265
Container-title:Genetic Testing and Molecular Biomarkers
language:en
Short-container-title:Genetic Testing and Molecular Biomarkers

Author:

Barazzetti Gaia¹²,Cavalli Samuele¹,Benaroyo Lazare³,Kaufmann Alain⁴

Affiliation:

1. Institute of History of Medicine and Public Health, University of Lausanne–CHUV University Hospital, Lausanne, Switzerland.

2. Faculty of Biology and Medicine, University of Lausanne–CHUV University Hospital, Lausanne, Switzerland.

3. Faculty of Biology and Medicine, and Ethos–Interdisciplinary Ethics Platform, University of Lausanne, Lausanne, Switzerland.

4. Science-Society Interface, University of Lausanne, Lausanne, Switzerland.

Publisher

Mary Ann Liebert Inc

Subject

Genetics(clinical),General Medicine

Link

http://www.liebertpub.com/doi/pdf/10.1089/gtmb.2016.0412

Reference27 articles.

1. 100 years lynch syndrome: what have we learned about psychosocial issues?

2. Psychosocial Issues in Cancer Genetics

3. Using thematic analysis in psychology

4. Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy

5. A tiered-layered-staged model for informed consent in personal genome testing

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1. Engagement of patients and the public in personalised prevention in Europe using genomic information: a scoping review;Frontiers in Public Health;2024-09-12

2. To donate or not to donate? Future healthcare professionals’ opinions on biobanking of human biological material for research purposes;BMC Medical Ethics;2023-07-22

3. Analyse critique de la méthode des forums citoyens à propos des craintes et espoirs associés aux progrès de la génomique en oncologie;Recherches qualitatives;2022

4. Return of individual research results from genomic research: A systematic review of stakeholder perspectives;PLOS ONE;2021-11-08

5. A Review of Regulatory Frameworks Governing Biobanking in the Low and Middle Income Member Countries of BCNet;Biopreservation and Biobanking;2021-10-01

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