National Rare Diseases Registry System of China and Related Cohort Studies: Vision and Roadmap-Reference-Cited by-同舟云学术

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National Rare Diseases Registry System of China and Related Cohort Studies: Vision and Roadmap

Published:2018-02 Issue:2 Volume:29 Page:128-135
ISSN:1043-0342
Container-title:Human Gene Therapy
language:en
Short-container-title:Human Gene Therapy

Author:

Feng Shi¹,Liu Shuang¹,Zhu Chong²³,Gong Mengchun²⁴,Zhu Yicheng²⁵,Zhang Shuyang²⁵

Affiliation:

1. Peking Union Medical College, Beijing, China.

2. National Rare Diseases Registry System of China, Beijing, China.

3. Digital China Health Technologies Co., Ltd., Beijing, China.

4. Rare Diseases Research Center, Chinese Academy of Medical Sciences, Beijing, China.

5. Peking Union Medical College Hospital, Beijing, China.

Publisher

Mary Ann Liebert Inc

Subject

Genetics,Molecular Biology,Molecular Medicine

Link

http://www.liebertpub.com/doi/pdf/10.1089/hum.2017.215

Reference43 articles.

1. Navigating through orphan medicinal product regulations in EU and US – Similarities and differences

2. Socio-economic burden of rare diseases: A systematic review of cost of illness evidence

3. Prevalence-Based Measurement of the Economic Burden of Rare Diseases: Case Review To Determine the Annual Cost of Acromegaly In France

4. Rare disease registries: a call to action

5. Next generation sequencing: Coping with rare genetic diseases in China

Cited by 15 articles. 订阅此论文施引文献订阅此论文施引文献，注册后可以免费订阅5篇论文的施引文献，订阅后可以查看论文全部施引文献

1. Budget Impact Analysis of High-priced Orphan Medicinal Products intended for the treatment of Rare Diseases in China: Evidence from a densely populated metropolis of Chengdu;2022-11-01

2. Rare disease curative care expenditure-financing scheme-health provider–beneficiary group analysis: an empirical study in Sichuan Province, China;Orphanet Journal of Rare Diseases;2022-10-08

3. Poor education and urgent information need for emergency physicians about rare diseases in China;Orphanet Journal of Rare Diseases;2022-05-26

4. Innovation in Informatics to Improve Clinical Care and Drug Accessibility for Rare Diseases in China;Frontiers in Pharmacology;2021-10-15

5. Clinical features and survival in Takayasu’s arteritis-associated pulmonary hypertension: a nationwide study;European Heart Journal;2021-09-10

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