At a Moment’s Notice: Community Advisory Board Perspectives on Biobank Communication to Supplement Broad Consent-Reference-Cited by-同舟云学术

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At a Moment’s Notice: Community Advisory Board Perspectives on Biobank Communication to Supplement Broad Consent

Published:2020 Issue:3-4 Volume:23 Page:77-89
ISSN:1662-4246
Container-title:Public Health Genomics
language:en
Short-container-title:Public Health Genomics

Author:

Meagher Karen M.,Curtis Susan H.,Gamm Kylie O.,Sutton Erica J.,McCormick Jennifer B.,Sharp Richard R.

Publisher

S. Karger AG

Subject

Genetics(clinical),Public Health, Environmental and Occupational Health

Reference68 articles.

1. Meslin EM. The value of using top-down and bottom-up approaches for building trust and transparency in biobanking. Public Health Genomics. 2010;13(4):207–14.

2. Greely HT. The uneasy ethical and legal underpinnings of large-scale genomic biobanks. Annu Rev Genomics Hum Genet. 2007;8(1):343–64.

3. Haga SB, Beskow LM. Ethical, legal, and social implications of biobanks for genetics research. Adv Genet. 2008;60:505–44.

4. Lynch HF, Bierer BE, Cohen IG. Confronting biospecimen exceptionalism in proposed revisions to the common rule. Hastings Cent Rep. 2016 Jan-Feb;46(1):4–5.

5. Dawson L. Common rule revised: opportunities lost. Am J Bioeth. 2017 Jul;17(7):46–8.

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1. Strategies for Data Ethics Governance: Elevating Patient and Community Perspectives;The American Journal of Bioethics;2023-10-25

2. Research-Related Stakeholders' Perspectives on Sociocultural Considerations in Biobanking Practice in South Africa;Biopreservation and Biobanking;2023-02-01

3. Adolescent Assent and Reconsent for Biobanking: Recent Developments and Emerging Ethical Issues;Frontiers in Medicine;2021-07-09

4. Stakeholders’ Interest and Attitudes toward Genomic Medicine and Pharmacogenomics Implementation in the United Arab Emirates: A Qualitative Study;Public Health Genomics;2021

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