Identifying What Pediatric Residents Are Taught About Children and Youth With Special Health Care Needs and the Medical Home

Author:

Nazarian Beverly L.1,Glader Laurie2,Choueiri Roula3,Shipman Deborah L.4,Sadof Matthew5

Affiliation:

1. Department of Pediatrics, UMass Memorial Children's Medical Center, University of Massachusetts Medical School, Worcester, Massachusetts;

2. Division of General Pediatrics, Children's Hospital Boston, Harvard University Medical School, Boston, Massachusetts;

3. Division of Developmental-Behavioral Pediatrics, Floating Hospital for Children, Tufts University Medical School, Boston, Massachusetts;

4. Fallon Clinic, Worcester, Massachusetts; and

5. Department of Pediatrics, Baystate Children's Hospital, Tufts University Medical School, Springfield, Massachusetts

Abstract

OBJECTIVE: To describe what and how pediatric residents in Massachusetts are taught about children and youth with special health care needs (CYSHCN) and the medical home. PARTICIPANTS AND METHODS: Faculty members and residents at Massachusetts' 5 pediatric residency programs were interviewed to identify current curricula and teaching methods related to care of CYSHCN. In addition, residents were surveyed to quantify these concepts. RESULTS: Thirty-one faculty members and 25 residents were interviewed. Most exposure to CYSHCN was reported to occur in inpatient settings. However, most formal teaching about CYSHCN was described as occurring in the ambulatory setting. Promising educational strategies included home and community visits, inclusion of CYSHCN in resident continuity panels, and simulation and role-playing. Overall, the programs had little training emphasis on the lives and needs of CYSHCN and their families outside the hospital setting. Twenty (80%) of the residents interviewed completed the written survey instrument. They noted a high degree of comfort in caring for CYSHCN in various settings and involving families in decision-making about their child's care but expressed less comfort in identifying community resources and collaborating with community agencies and schools. CONCLUSIONS: Programs offer a variety of successful educational and clinical experiences related to the medical home and CYSHCN. The results of our study indicate that residents and faculty members believe that residents would benefit from more formal training opportunities to learn directly from families and community representatives about caring for CYSHCN.

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology, and Child Health

Reference19 articles.

1. A new definition of children with special health care needs;McPherson;Pediatrics,1998

2. A family-center community-based system of services for children and youth with special health care needs;Perrin;Arch Pediatr Adolesc Med,2007

3. The medical home;American Academy of Pediatrics, Medical Home Initiatives for Children With Special Needs Project Advisory Committee;Pediatrics,2002

4. Maternal and Child Health Bureau, Division of Services for Children With Special Health Care Needs. Definition and principles of family-centered care for children. Available at: www.familyvoices.org/pub/index.php?topic-fcc. Accessed October 8, 2010

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