Efficacy of Psychosocial Group Intervention for Children With Chronic Illness and Their Parents

Author:

Scholten Linde1,Willemen Agnes M.2,Last Bob F.12,Maurice-Stam Heleen1,van Dijk Elisabeth M.3,Ensink Elske4,Zandbelt Noortje5,van der Hoop-Mooij Aafke6,Schuengel Carlo2,Grootenhuis Martha A.1

Affiliation:

1. Psychosocial Department, Emma Children’s Hospital Academic Medical Center, Amsterdam, Netherlands;

2. Department of Clinical Child and Family Studies, and EMGO Institute for Health and Care Research, VU University Amsterdam, Netherlands;

3. Department of Medical Psychology, Section of Pediatric Psychology, VU Medical Center, Amsterdam, Netherlands;

4. Department of Medical Psychology, Section of Pediatric Psychology, Radboud University Medical Center, Nijmegen, Netherlands;

5. Children’s Clinic/De Kinderkliniek, Almere, Netherlands; and

6. Admiraal de Ruijter Hospital, Goes, Netherlands

Abstract

OBJECTIVE: To investigate the efficacy of a cognitive-behavioral group intervention for children with chronic illnesses and to test the effect of an added parent component. METHODS: Children (n = 194) and their parents participated in a multicenter randomized clinical trial comparing a child-only intervention and a parent-child intervention to a wait-list control group. Primary outcomes were parent- and self-reported internalizing and externalizing problems; secondary outcomes were child disease-related coping skills (information seeking, relaxation, social competence, medical compliance, and positive thinking). Assessments took place at baseline and at 6- and 12-month follow-ups. Intention-to-treat mixed-model analyses were performed to test the difference in change in outcomes. RESULTS: The intervention had a positive effect on changes in parent-reported internalizing problems, child-reported externalizing problems, information seeking, social competence, and positive thinking. The additional effect of parental involvement was observed on parent-reported internalizing problems, child-reported externalizing problems, information seeking, and social competence. Illness severity and illness type did not moderate the effects. There were no intervention effects on child-reported internalizing problems, parent-reported externalizing problems, relaxation, or medical compliance. Of the families in the wait-list control group, 74% sought alternative psychological support during the intervention period. CONCLUSIONS: This RCT supports the efficacy of a protocol-based group intervention for children with chronic illnesses and their parents. Adding a parental component to the intervention contributed to the persistence of the effects. Future research should focus on moderating and mediating effects of the intervention.

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology and Child Health

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