Please Do Whatever It Takes to End Our Daughter’s Suffering!

Author:

Clément de Cléty Stéphan1,Friedel Marie2,Verhagen A.A. Eduard3,Lantos John D.4,Carter Brian S.4

Affiliation:

1. Cliniques universitaires St Luc, Université catholique de Louvain, Brussels, Belgium;

2. Haute Ecole Vinci and Université catholique de Louvain, Brussels, Belgium;

3. Beatrix Children’s Hospital, University Medical Center Groningen, University of Groningen, Groningen, Netherlands; and

4. Children’s Mercy Hospital and University of Missouri, Kansas City, Missouri

Abstract

What is the best way to care for a child with severe neurologic impairment who seems to be dying and is in intractable pain? Can we give sedation as we remove life support? Is it ethically permissible to hasten death? In the United States, 5 states have legalized assisted suicide (although only for competent adults). In Belgium and the Netherlands, euthanasia is legal for children under some circumstances. We present a case in which parents and doctors face difficult decisions about palliative care. Experts from Belgium, the Netherlands, and the United States then discuss how they would respond to such a case.

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology and Child Health

Cited by 9 articles. 订阅此论文施引文献 订阅此论文施引文献,注册后可以免费订阅5篇论文的施引文献,订阅后可以查看论文全部施引文献

1. Neonatal suffering, theories of suffering, phenomenology, existential feelings;Estudios de Filosofía;2024

2. What we talk about when we talk about pediatric suffering;Philosophical Investigations into the Essence of Pediatric Suffering;2022

3. Palliative Sedation;Sedation and Analgesia for the Pediatric Intensivist;2020-10-29

4. Chapitre 50. La liaison pédiatrique. Un modèle original de soins palliatifs pédiatriques transmuraux;Manuel de soins palliatifs;2020-08-12

5. What we talk about when we talk about pediatric suffering;Theoretical Medicine and Bioethics;2020-08

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