Trisomy 18 and Complex Congenital Heart Disease: Seeking the Threshold Benefit-Reference-Cited by-同舟云学术

Trisomy 18 and Complex Congenital Heart Disease: Seeking the Threshold Benefit

Published:2013-07-01 Issue:1 Volume:132 Page:161-165
ISSN:0031-4005
Container-title:Pediatrics
language:en
Short-container-title:

Author:

Boss Renee D.¹²,Holmes Kathryn W.³,Althaus Janyne¹,Rushton Cynda H.²⁴,McNee Hunter,McNee Theresa

Affiliation:

1. Department of Pediatrics, Johns Hopkins University School of Medicine,

2. Johns Hopkins Berman Institute of Bioethics, and

3. Department of Pediatrics, Oregon Health and Science University, Portland, Oregon

4. Department of Acute and Chronic Care, Johns Hopkins University School of Nursing, Baltimore, Maryland; and

Abstract

A prenatal diagnosis of ductal-dependent, complex congenital heart disease was made in a fetus with trisomy 18. The parents requested that the genetic diagnosis be excluded from all medical and surgical decision-making and that all life-prolonging therapies be made available to their infant. There was conflict among the medical team about what threshold of neonatal benefit could outweigh maternal and neonatal treatment burdens. A prenatal ethics consultation was requested.

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology and Child Health

Link

https://publications.aap.org/pediatrics/article-pdf/132/1/161/1102218/peds_2012-3643.pdf

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