Considering Equity in Assessing Familial Benefit From the Return of Genomic Research Results-Reference-Cited by-同舟云学术

Considering Equity in Assessing Familial Benefit From the Return of Genomic Research Results

Published:2019-12-01 Issue:6 Volume:144 Page:
ISSN:0031-4005
Container-title:Pediatrics
language:en
Short-container-title:

Author:

Goldenberg Aaron J.¹

Affiliation:

1. Department of Bioethics, Center for Genetic Research Ethics and Law, School of Medicine, Case Western Reserve University, Cleveland, Ohio

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology, and Child Health

Link

https://publications.aap.org/pediatrics/article-pdf/doi/10.1542/peds.2019-3111/1079460/peds_20193111.pdf

Reference10 articles.

1. Collins FS. Francis Collins says medicine in the future will be tailored to your genes. Wall Street Journal. July 7, 2014. Available at: www.wsj.com/articles/francis-collins-says-medicine-in-the-future-will-be-tailored-to-your-genes-1404763139. Accessed September 20, 2019

2. Potential uses and inherent challenges of using genome-scale sequencing to augment current newborn screening;Berg;Cold Spring Harb Perspect Med,2015

3. Whole-genome sequencing in newborn screening programs;Knoppers;Sci Transl Med,2014

4. From genetics to genomics: ethics, policy, and parental decision-making;Wilfond;J Pediatr Psychol,2009

5. Ethical issues in newborn sequencing research: the case study of BabySeq;Ross;Pediatrics,2019

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1. Age-Based Genomic Screening during Childhood: Ethical and Practical Considerations in Public Health Genomics Implementation;International Journal of Neonatal Screening;2023-06-27

2. Parental Guidance Suggested: Engaging Parents as Partners in Research Studies of Genomic Screening for a Pediatric Population;Frontiers in Genetics;2022-03-25