Child Abuse, Incarceration, and Decisions About Life-sustaining Treatment

Author:

Mann Paul C.1,Weiss Elliott Mark2,Seltzer Rebecca R.34,Dodge Rachel A.B.3,Boss Renee D.34,Lantos John D.5

Affiliation:

1. Division of Neonatology, Department of Pediatrics, Medical College of Georgia, Augusta University, Augusta, Georgia;

2. Division of Neonatology, Department of Pediatrics, School of Medicine, University of Washington and Treuman Katz Center for Pediatric Bioethics, Seattle Children’s Hospital and Research Institute, Seattle, Washington;

3. Department of Pediatrics, School of Medicine and

4. Johns Hopkins Berman Institute of Bioethics, John Hopkins University, Baltimore, Maryland; and

5. Center for Bioethics, Department of Pediatrics, Children’s Mercy Hospital, Kansas City, Missouri

Abstract

Most critical care interventions for children occur in the framework of a supportive environment with loving parents that are present at the bedside to help to guide medical interventions through shared decision-making. What happens, however, if the parents are precluded from being at the bedside because of legal entanglements? How should clinical decisions progress in those cases? In this Ethics Rounds, we present the case of an infant with severe hypoxic-ischemic encephalopathy at birth whose mother was incarcerated shortly after delivery. We explore clinical and legal challenges that the medical team faces in determining best interests for the infant in this context and difficulties in deciding what therapies to provide and for how long.

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology, and Child Health

Reference16 articles.

1. Criminalization of pregnant women with substance use disorders.;J Obstet Gynecol Neonatal Nurs,2015

2. Tracheostomies and assisted ventilation in children with profound disabilities: navigating family and professional values.;Wilfond;Pediatrics,2014

3. Decision-making for children with disabilities: parental discretion and moral ambiguity.;Diekema;Perspect Biol Med,2016

4. Is it in the best interests of an intellectually disabled infant to die?;Wilkinson;J Med Ethics,2006

5. Amnesty International. Criminalizing pregnancy: policing pregnant women who use drugs in the USA. 2017. Available at: https://www.amnestyusa.org/reports/criminalizing-pregnancy-policing-pregnant-women-use-drugs-usa/. Accessed February 8, 2017

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