Health Equity for Children and Youth With Special Health Care Needs: A Vision for the Future

Author:

Houtrow Amy12,Martin Alison J.34,Harris Debbi56,Cejas Diana7,Hutson Rachel8,Mazloomdoost Yasmin9,Agrawal Rishi K.1011

Affiliation:

1. aDepartments of Physical Medicine Rehabilitation

2. bPediatrics, University of Pittsburgh, Pittsburgh, Pennsylvania

3. cOregon Center for Children and Youth with Special Health Needs, School of Public Health, Oregon Health and Science University-Portland State University, Portland, Oregon

4. dInstitute on Development and Disability, Oregon Health and Science University, Portland, Oregon

5. eThe Arc of the United States, Washington, District of Columbia

6. fFamily Voices of Minnesota, St. Paul, Minnesota

7. gCarolina Institute for Developmental Disabilities, University of North Carolina at Chapel Hill, Carrboro, North Carolina

8. hTitle V Maternal and Child Health, Colorado Department of Public Health and Environment

9. iHealth Resources and Services Administration, Rockville, Maryland

10. jAnn and Robert H. Lurie Children’s Hospital of Chicago, Chicago, Illinois

11. kDepartment of Pediatrics, Feinberg School of Medicine, Northwestern University, Chicago, Illinois

Abstract

Health equity is a key pillar in supporting a future in which CYSHCN enjoy a full life and thrive, as envisioned by experts and community partners who gathered in 2019 and 2020 to develop the Blueprint for Change: Guiding Principles for a System of Services for Children and Youth With Special Health Care Needs and Their Families. However, a variety of contextual factors impact health outcomes across the life course and intergenerationally and must be addressed to achieve this goal. For example, poverty and discrimination, including by some health care professionals and systems, are important, modifiable root causes of poor health outcomes. There are numerous barriers to achieving health equity, including political will, lack of resources, insufficient training, and limited cross-sector collaborations. Political, cultural, societal, and environmental interventions are necessary to eliminate health disparities and achieve health equity. The entities that serve CYSHCN should be equitably designed and implemented to improve health outcomes and address health disparities. Many entities that serve CYSHCN are taking positive steps through workforce development, policy changes, community engagement, and other means. The purpose of this article is to frame health equity for CYSHCN, detail their health disparities, review barriers to health equity, provide examples of strategies to advance health equity for them, and describe a path toward the future in which all CYSHCN have a fair and just opportunity to be as healthy as possible.

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology and Child Health

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