Supporting the Family After the Death of a Child or Adolescent

Author:

Weaver Meaghann S.12,Nasir Arwa3,Lord Blyth T.4,Starin Amy5,Linebarger Jennifer S.6,Nasir Arwa Abdulhaq,Berger-Jenkins Evelyn,Davis Beth Ellen,Dworkin Paul H.,Johnson Tiffani Jenae,Mathieu Irene P.,Sriraman Natasha Kapoor,Davis Kathleen Hobson,Debattista Anne,Fraser Heather,Schlesinger Abigail Boden,Warczak Zoe H.,Wheatley Robyn,Haro Tamar Magarik,Ufomata Omonigho,Klick Jeffrey C.,Boss Renee Denise,Collura Christopher Alexander,Johnson Khaliah,Miller Elissa,Williams Conrad S.P.,Linebarger Jennifer Suzanne,Humphrey Lisa Michelle,Ajayi Tolúwalàsé,Laughman Anna,Lord Blyth,Kuznetsov Alexandra,Haro Tamar Magarik, ,

Affiliation:

1. aDepartment of Pediatrics, University of Nebraska Medical Center, Omaha, Nebraska

2. bNational Center for Ethics in Health Care, Veterans Health Affairs, Washington, District of Columbia

3. cDepartment of Pediatrics, University of Nebraska, Omaha, Nebraska

4. dCourageous Parents Network, Newton, Massachusetts

5. eNational Association of Social Workers, Washington, District of Columbia

6. fDepartment of Pediatrics, Children’s Mercy Kansas City, University of Missouri, Kansas City, School of Medicine, Kansas City, Missouri

Abstract

Whether death occurs in the context of a chronic illness or as the sudden loss of a previously healthy infant, child, or adolescent, the death of a child is a highly stressful and traumatic event. Psychosocial support for families after the death of a child embodies core medical values of professional fidelity, compassion, respect for human dignity, and promotion of the best interests of a grieving family. The pediatrician has an important role in supporting the family unit after the death of a child through a family-centered, culturally humble, trauma-informed approach. This clinical report aims to provide the pediatrician with a review of the current evidence on grief, bereavement, and mourning after the loss of a child and with practical guidance to support family caregivers, siblings, and the child’s community. Pediatricians have an important role in helping siblings and helping families understand sibling needs during grief. Ways for pediatricians to support family members with cultural sensitivity are suggested and other helpful resources in the community are described.

Publisher

American Academy of Pediatrics (AAP)

Subject

Pediatrics, Perinatology and Child Health

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